Plans? What plans?

As 2018 gets under way it’s usual to think about the year ahead and set goals both for your personal and business life and perhaps plan holidays or other adventures. I did that for years.


It’s summer in Australia and generally known as a holiday month. Schools are closed and many businesses are either closed or have reduced hours during January. Many of my Specialists are also on holiday, so that allows me a little time out from tests and appointments. I’m so grateful for a mini reprieve from the medical scene.

I’ve always loved the quietness of January, particularly when I was working, as it gave me time to slow down a little and think about the future and the year ahead.

I’ve been asked a few times over the past week “Do you have any plans for the year?” Since medically retiring that is probably the hardest question anyone could ask me.  Not that it upsets me or that I’m incapable of planning, it’s just that I haven’t been able to make concrete plans now for a number of years.

Well actually that’s not technically correct. I can make them, I just can’t guarantee I can achieve them and the likelihood is, I would have to bail out at the last moment if I did make them.

So as I pondered that question, “What are your plans for the year?”, I had to admit that I don’t have any set plans for 2018.

I have health hurdles and challenges that I intend to get through with as much grace and determination as I can muster. I have purpose in terms of writing and administrating my online support forum.

Outside of that I am living one day at a time, often one step at a time…literally.

There is however something quite liberating about that. I don’t know what lies ahead, none of us do. So instead of looking ahead for the next goal to be achieved, or the next adventure to come along, I am hoping to enjoy each special moment in each day. It’s all I can do.

Would I like to have a holiday booked? Of course.

Would I like to be able to work? Absolutely.

Would I like to be able to book a restaurant for a special occasion? Definitely.

I’d like to do many things. To say otherwise wouldn’t be true but focusing on what I can’t do isn’t going to help me live well with chronic disease.

Focusing on what I can do, no matter the limitations, helps me remain positive and outward looking.

Some of my moments are so full of pain that I long for those to pass. The moments when I can do a little bit more than the moment before it, I “plan” to enjoy as much as possible.

I might not be able to set great goals or have planned adventures ahead but I’m still glad it’s a new year. It will be full of surprises whether I plan them or not. It will be full of joys and disappointments too. The best I can do, the best anyone can do, is to embrace each and every experience. If I do that I am embracing life and all that it has to offer.

I might not be able to make concrete plans for 2018, thanks to my rare disease, but after living a crazy life, before chronic illness, of copious plans, agendas, schedules, conferences, appointments and constant phone calls… know what? I can breathe, I can relax and just allow the adventure called “life” to unfold as the year rolls along.


So “What are my plans?”. I plan to live as well as possible, within my limitations and enjoy what I can, when I can.

I remember dreaming of having a life like that when I was working and so exhausted. So I guess you could say I’m living the dream!

Considering my underlying illness, that’s definitely a much better way to look at my life with no plans. For me it’s the only way I can live so I’m choosing to embrace it 😊


If you’re looking for genuine support, care, understanding & friendship, you are so welcome to join my closed Facebook support forum, Medical Musings with Friends . It’s a safe place to connect with others living with chronic & complex diseases, who truly understand the daily challenges. A warm welcome awaits.

I’m a Contributor at “The Mighty”. You can check out my published articles at My Author Page

I also write @ Blogs by Christian Women


3 thoughts on “Plans? What plans?

  1. My plan is to skydive this year. I have to lose a few pounds, but i have already lost a lot and I am close. I have to get approvals from several doctors but i think they will give it and I have to convince my wife. But, I see it might in reach.

    OK the wife art will be difficult, but I have never met a goal I can be talked out of. Oh and reason? Psst,, Reason never enters the discussion, never (I mean out of my mouth anyway).

    Liked by 1 person

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