Loves and Losses

You would be forgiven for thinking this is a Valentine’s Day post given the title I’ve chosen. Please rest assured it’s not.

It’s really a continuation of my recent Acceptance article, where I was musing about acceptance not being a sad resignation to my chronic illness life.

For me acceptance is an acknowledgement my disabling rare disease “is what it is”.

I have formed strategies, over the past four years, to adjust to my change in circumstances and to live a contented life. I’ve discovered new loves along the way and I’ve shared many of these throughout my blog. You can read about them in My Story

In this post I want to talk about “Loves and Losses” in the context of acceptance.

I love my life, I am happy and I have a general positive disposition no matter what life throws at me.

That doesn’t mean I don’t miss things I have always loved but can no longer do.

It doesn’t mean there are not days when I feel the loss of my loves deeply.

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The 5 G’s of Change

I have a particular grief model I liked to use when I worked as a Management Consultant. It’s a little less clinical I think than some models. It’s called the “5 G’s of Change”:

Griping – this stage is when you feel like you just can’t do this. It’s all too much.

Groaning– this stage is the complaining stage.

Groping – this stage you begin to walk forward as if in a forest, moving the trees out of your way so you can begin to see a little clearer.

Grasping – You begin to understand what the new situation means.

Growing – You embrace the new, find ways to live again and acceptance brings peace.

When we lose a loved one we go through every stage of grief. Some stages we may get stuck in for a while. Some stages we may move through quicker than others.

Eventually we accept our loved one has passed. We begin to learn to live again.

A part of us will never be the same because of the loss of the one we loved, but as time goes by the memories don’t hurt as much. Those memories may even bring joy and comfort.

We will always miss our loved one.

It’s the same with any major life loss, including the loss of good health. It takes time to work through the stages of grief. We may get stuck in some stages but eventually we’ll grasp our new reality.

We will learn to live again. We’ll never be the same but we will, at some point, accept and embrace a new way of living. We’ll create new norms.

We’ll definitely miss aspects of our old life. Some things we once loved but can no longer do, become real losses.

My Loves and Losses

I loved to go on long walks with my husband along the beach, in parks or in the bush. I can’t walk now without crutches and for distances more than 200 merest I need a wheelchair/scooter. Most days I don’t have the physical strength, due to pain, to leave my home.

I loved to go to Church. I now can’t sit for the length of a service due to my broken legs and widespread bone pain. My stoma is so unpredictable I need access to disabled toilets, which unfortunately not all churches have.

I loved to go to work. My work wasn’t a job, it was a passion. Leading people was a joy. I was living my dream. I had my dream job. Weekends were nice but Monday to Friday were what I looked forward to. Sad maybe but true 😀

I loved to jump out of bed every morning bright and early. Mornings were always the best part of my day. I woke with enthusiasm and passion for what the day held. I still do to some degree….until I try to move my body and the realisation sets in that I am not the girl I used to be. Mornings now bring a whole new meaning to “a daily wakeup call”. I am faced with my new reality the moment I open my eyes.

I loved long road trips. My husband and I have a whole cupboard full of photo albums cataloguing our road trips across Australia. Such beautiful memories are also a stark reminder of what I have lost. Looking at them is definitely bitter sweet.

Being Independent. I’ve never been one to crave independence, even when I was healthy, but once you no longer have the ability to jump in a car and drive to the local shops or go to a hairdresser appointment etc on your own, independence is suddenly a loss. I am 100% reliant on my husband to be with me outside of the home and to help me with most things in the home.

I loved to go to restaurants. Those days are gone. I can manage 20 mins in a local cafe on a rare good day but any longer and my pain levels are unbearable.

I loved being spontaneous. My husband and I always enjoyed just deciding on a whim to head out on an adventure or go on holiday on short notice. We had freedom to accept job opportunities all over the country. We have moved locations and homes over 17 times in our 22 years of marriage. Those days are well and truly gone. The most spontaneous thing I do now is buy something online as a treat, which leads me to…

I loved going shopping. My favourite pastime,when I wasn’t at work, was strolling through our local Westfield Shopping Centre with my husband. We would window shop for hours hand in hand. We’d stop for a coffee and a snack and head off again, enjoying every minute.


My losses are my husband’s losses too. He misses all the things we did together. He has also had to travel his own journey towards acceptance.

Discovering New Loves

So a life of acceptance will be a life that encompasses loves and losses. New loves will be discovered. My old loves are still very much a part of me. They are part of my DNA so to forget them or be fearful of remembering them, won’t help me accept I am now living and writing a new chapter of my life.

I accept my losses and acknowledge I miss them. It’s ok to miss things we loved.

My response to accepting the changes in my life, is to constantly find ways to fill the void of my losses with new loves.

If you are having a day, or season, when you are feeling deeply the loss of the things you loved to do, take time out to think about how you can create a new love that will help fill that void.

You might just be surprised at how creative you can be with your ideas once you start brainstorming. Enlisting the help of close friends or online support group friends, may get you started with an ideas list.

Whatever grief stage you are at, in your life changing event, don’t be afraid to contemplate your loves and losses.

It’s a healthy response to change.

It’s all part of journeying towards the acceptance process!

Take care

Sam xx

If you’re looking for genuine support, care, understanding and friendship, you are so welcome to join my closed Facebook support forum, Medical Musings with Friends . It’s a safe place to connect with others living with chronic and complex diseases, who truly understand the daily challenges. A warm welcome awaits.

I’m  a regular Contributor at “The Mighty”. You can check out my published articles at My Author Page

I also write @ Blogs by Christian Women

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19 thoughts on “Loves and Losses

    1. Thanks Caz. I definitely revisit the 5 Gs on a regular basis. It’s usually a quick trip through nowadays but I think pit stops at each stage is essential, especially for those of us dealing with the ongoing twists and turns of chronic disease.
      Sam xx

      Liked by 1 person

  1. Powerful, poignant article. I know this account of accepting loss, and adapting to new ‘loves’ is so true for many of my blog visitors. It is only true for me on a much smaller scale. This was so well written and beautiful, and such a great message for contentment- in the place where we are. Thank you thank you thank you!


    1. So true I didn’t realize how much my losses were affecting me. I was just depressed. Now i understand more. But it’s very difficult to find “new loves” when you’re in constant pain, can barely walk for very short time, you cannot drive and have NO family or close friends to help you. Spend most of my time “involved” with the messed up medical system, rest laying on an air mattress due to pain, inability to hold my head up for TV, reading etc Not sure how to grieve all my losses, trying, but still feel cheated out of much of my life

      Liked by 1 person

      1. Lauren, I do so understand. Much of what you describe is my daily life too. I am blessed to have my husband as my carer but we don’t have any family or friends close by either. The walls of my home are my confines aside from medical appointments & the rare occasion when I’m feeling strong enough to bear the pain if sitting in a local cafe for 30mins for a coffee & to breathe the sea air.
        it’s not easy to just forget all the things you were once able but quality of life can come in varying ways.
        Some people find it useful to start a gratitude journal. A little book (or use your phone notes) where you jot down at least one thing that you are grateful for in that day. I know that sounds like nothing much but it’s a small step to beginning to live in the moment rather than looking back on what was.
        I’m not sure if you’re a member of my support forum, Medical Musings with Friends but we have some beautiful members with varying chronic & rare diseases all at different stages of acceptance. Speaking to others in a safe environment can make a huge difference.
        Thinking of you
        Sam 💞


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