Medical Musings with Friends started in January 2017. I was resting one afternoon in my bedroom, contemplating the new year ahead and wondering what possible purpose my life could hold, as my body kept spectacularly attacking me from every angle.
I have a Rare Genetic Bone Disease with multiple bone breaks, ongoing surgeries, severe spinal stenosis compressing my lumbar spinal cord, Rheumatoid Arthritis, Permanent Colostomy due to a bowel prolapse, Fibromyalgia, Sjogrens Syndrome, Trigeminal Neuralgia, an Idiopathic Inflammatory Nerve Disease, plus a few other issues. It can be slightly overwhelming when the list adds up.
I suddenly had an idea, a slightly crazy idea, that maybe if I set up a closed forum for people with chronic, complex and rare diseases it could be an extension of my blog.
A place where a few people could gather to provide support and genuine understanding. A place where it was ok to “muse” about how complex life gets when you have more than one illness.
A place where you know others wouldn’t get scared by what they read but would feel your pain and understand your struggles. A place where other chronic illness bloggers and writers could share their work and words of wisdom.
A few people, maybe 50, or so I thought.
Within 6 months we had over 1400 members. We continue to grow our membership weekly which still amazes me.
Unbelievable!! What a blessing, what a purpose, what an honour and privilege, to be trusted to provide such a large group of people a place to find true friendship, support and understanding.
So, I thought it was time to introduce more formally my beautiful team of moderators. They have each provided a short bio to tell you in their own words a little about themselves, plus a photo.
I can’t thank them enough for their personal support and commitment in joining me in this crazy musings journey. They are just the best, most warmest, caring people you could meet and they all volunteer their time while living with their own complex chronic diseases.💗💗
So, here’s me…I live with my beautiful husband Peter, who is also my full time carer. We live in stunning South East Queensland, Australia, in a country suburb, near the scenic rim. When I’m not busy chatting with you all on the forum, I’m usually found blogging here on “My Medical Musings” or writing articles.
If you would like to read a little more about me here’s the link to My Story
You can also check out my Podcast, Medical Musings With Sam
I’m a regular Contributor at “The Mighty”. You can check out my published articles at My Author Page
I also write @ Blogs by Christian Women
Sam Moss – Founder/Administrator (Australia)
I have lived with Auto Immune conditions since I was 11 years of age and they add up to SLE (Lupus), RA, Osteoporosis and Ménière’s disease.
I’m known as Nik Puppykins…lover of two fur baby dogs. I have two, which, in conjunction with my gorgeous Mum, light up my life every day.
(Yes… I live with my wacky, meddling, inspiring, gorgeous, loving Mum ❤️)
My life is positively wonderful and full, despite many episodic hardships over the years.
My motto is:
“One life…live it now, well, with joy and love and inspire others to do the same”
Family, friends, puppy cuddling, photography, market wandering, coffee, sushi, blue cheese, travel (and probably a few other loves I’ve forgotten!)..complete me. 😘😘
Nik Watson ( Australian Administrator)
Hello there my name is Dave, I’ve been married for 10 years, my wife and I have a 9 year old daughter as well as a 7 year old son.
Before the age of 21 I was rather healthy. In 2003 I was admitted to hospital and diagnosed with Ulceritive Colitis which after a few weeks in hospital it was determined I would require an Ileostomy. The Ileostomy is no permanent which is something I don’t mind at all.
In 2007 I was diagnosed with Multiple Sclerosis. This was a significant changing point in my life to say the least. I have been on three treatments for my MS, one of which did cause seizures at least one confirmed Gran Mal.
In 2012, I began to develop issues with my skin on both legs, arms as well as my back. After a number of doctors mis diagnosed the issue I was given the proper diagnosis of Pyoderma Gangrenosum. A very rare skin disease likened to having Ulceritive Colitis on the surface of the skin.
On a daily basis I have issues with my MS, my right shin has lifelong significant damage from the PG. I have come to a point I cannot work Full Time as it simply takes too much out of me. I began a blog in January 2017 in the hopes of sharing my experiences while helping others through their challenges and to understand they are not alone.
I am truly grateful for being a member of such an incredible group of individuals. We all have commonalities and are here to support, encourage and sometimes just listen.
Below are the links to my blog as well as Social Media feedsbforbthosebthat may be interested in learning or asking more.
Dave Head (Canadian/US Moderator)
Guest Moderator- Shannon Moss
Hi everyone! I am Shannon and I have Idiopathic Intracranial Hypertension and Congenital Third Degree Heart Block. I had a VP Shunt installed in 2014. I am in remission right now and have been for a few years since surgery.
I was in intense chronic pain for a long time before surgery and Sam Moss, who is my mother in law, reached out to me, understood, supported me and has become one of my best friends.
We live on opposite sides of Australia and have never met physically in person, as travel is impossible for Sam with her health and my partner and I have been busy with our young son, who is 2 and a half, but we will get there one day soon it’s in the plans!
So happy to be part of the team as I have been a member of MMWF forum since the beginning. I actually joke with Sam about how I had her all to myself when I was sick as this fantastic forum hadn’t been born yet. Connection is so important, especially in times like now 🌺🌻🌷
Shannon Moss – Guest Moderator Australia
If you’re looking for genuine support, care, understanding and friendship, you are so welcome to join Medical Musings with Friends. Feel free to also share the link with any others you know who have a chronic illness and may benefit from a safe place to connect with others living with chronic and complex diseases, who truly understand the daily challenges. A warm welcome awaits.