Loving “Moments” of Life

I would have thought that being disabled, and pretty much housebound, life would go slowly. I’d have thought each day would drag and each hour would leave me wondering how to fill my time.

Ha…How Wrong Was I !!

I can’t believe 2018 is nearly over.

What have I done with my year? What makes a chronic illness existence so busy?

As I pondered those questions I realised the answer to both, lies in how I spend my moments, not necessarily my days.

I’ve adjusted to my new life by filling it with moments of purpose. In many regards, I am working as hard now as I was when I was actively employed and enjoying a successful career.

My online forum has replaced my old work life. My days are full of beautiful people and amazing conversations, in a virtual sense rather than in the workplace. I have an admin team to care for and 1600 plus forum members to provide a much needed service to.

On top of that I blog, write, manage my health and help my husband care for our home. My health takes up a lot of time with appointments, procedures and surgeries and just overall pacing of all basic physical activities.

Put all that together and hours, days, weeks, months and quite clearly a whole year, just fly by.


Loving Life

As crazy as this may sound, I’m loving life.

I say crazy because I’m sure many people must think I should be curled up in a ball, rocking back and forth in a corner. I have considered it on really bad days but it’s just not me.

Broken bones due to my crippling bone disease, Rheumatoid Arthritis and associated autoimmune issues, extreme fatigue and a stoma don’t bode well for a “loving life” campaign. But that’s just my flesh and bones. It’s not my soul. It’s not what really matters.

My heart still beats and my brain still works and I am so so grateful for that. Yes, life can be hard and many days out of the 365 per year are not pretty, but moments in those days are.

Moment by Moment

Moments when the pain meds kick in enough to let me write or be active on my forum. Moments when I can do something nice with or for my husband.

They are the moments that are strung together to make the year go fast. They are the moments that complete me. They are the moments that make me love life. They are the moments that cause me to push on and not give up.

This is life. This is my life. I only get one and it needs to matter.

Troubles Are Momentary Too

2 Corinthians 4:17 (NIV)

For our light and momentary troubles are achieving for us an eternal glory that far outweighs them all.

When living with chronic disease it can so easily feel as if our flares and high pain levels are unrelenting. Believe me I often feel like that. The pain is real, the disability is real.

However, the excruciating pain I suffer comes in waves. The pain is always high but I’ve adjusted to a moderate level of pain where I can function, in my restrictive way.

The excruciating pain lasts for moments. Sometimes too many moments strung together, but moments nonetheless.

If I think about my days in terms of moments, I can focus on the fact I will get moments when moderate pain allows me to write, to laugh, to listen, to participate in life to some degree.

The moments of severe pain and darkness will be outweighed by the lighter moments….every single time.

What About Days When There Are No Light Moments?

Yes, they do happen but they are rare. Even when I’ve been in hospital, post major surgery, there has still been something to make me smile. A caring nurse, seeing my husband walk through the door with a real coffee in hand or a decent cup of tea, these moments stand out to me.

These little moments of relief manage to squeeze their way into the dark days. We just have to look for them and hold onto them. They offer us hope that bigger, brighter moments are just around the corner.

If you really are feeling completely overwhelmed by your disabled and chronic illness life, it’s so important to seek help.

Professional counsellors can help provide coping techniques and skills to assist you live your best life possible.

It’s not about living in denial or being delusional about the reality of the hard moments. By acknowledging those, we can learn to use them to absolutely savour the good moments.

Life then becomes precious, every single day.

I sometimes think I’m more alive now than when I was healthy, living a crazy rat race existence. I just ran from moment to moment and day to day in my old life and much of it is a blur as I look back.

New Year Moments

As a new year approaches I won’t be making any great resolutions or setting any concrete plans. I have some rough idea of events and tasks which require some effort and thought, but timeframes need to be flexible.

I know there will be tough moments followed by good moments and that’s enough for me.

Afterall, life is like that in both sickness and in health. None of us are immune from the highs and the lows.

How we choose to live with them and through them, makes all the difference.

I know what I’m going to choose. I choose to live for moments of happiness, creativity, community, love and moderate pain. I choose to hold on to hope for bright moments to follow tough ones.

Rather than expecting a perfect life filled with halcyon days, I choose to love and cherish the moments of my life where I can engage with some of the activities I enjoy.

What will you choose?

Sam xx

If you’re looking for genuine support, care, understanding & friendship, you are so welcome to join my closed Facebook support forum, Medical Musings with Friends . It’s a safe place to connect with others living with chronic & complex diseases, who truly understand the daily challenges. A warm welcome awaits.

I’m a Contributor at “The Mighty”. You can check out my published articles at My Author Page

I also write @ Blogs by Christian Women


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WEGO Health Award 2018 Nominee





20 thoughts on “Loving “Moments” of Life

  1. Your Attitude has brought you so far Sam. Its the light and positivity you display that draws people to you, as i have been by your words. You are an inspiration to all and myself. I havent had the best weekend but thanks to you, Sunday afternoon has gotten better. 💐

    Liked by 2 people

    1. Thank you so much for your beautiful comment. I’m sorry your Sunday has been a difficult one but I really hope the afternoon continues to improve and gives you “moments” of joy xx

      Liked by 1 person

  2. Hi Sam, Funny I was thinking yesterday how quickly the year has gone. I agree with you that the meaning of life now is more important than work craziness. Although that was exciting in a different way. I am glad you mentioned counseling. I have recently returned. I have not been able to pull out of the dark on my own this time even though I’m mostly positive like you. It’s important we have that option added when needed to our heath care team. I am hoping for a joyous Christmas 🎄 for you and your husband. I know god smiles when he sees you and has given you the ability to share so much with others! Hugs! 💕 Marla

    Liked by 2 people

    1. Oh Marla, that’s so beautiful. I think you’ve been my biggest supporter all year and I can’t thank you enough. I so hope and pray you have a beautiful Christmas and a bright New Year. I’m looking forward to journeying through 2019 with you. Lots of love xx


  3. You write with such honesty and insight, Sam. I totally agree with this, you’ve said it so well – “It’s not about living in denial or being delusion about the reality of the hard moments. By acknowledging those, we can learn to use them to absolutely savour the good moments.” xxxx

    Liked by 1 person

  4. I just want to add a ditto to each of these comments, Sam. Your positivity and cheerfulness is contagious! Whenever I begin to lament my condition, You come to mind. It’s always good to think of the courage you show us in extreme pain.

    Have a very Merry Christmas,


    Liked by 1 person

  5. I love this!! It is so much about looking for those positives in our days!! My strength is not mine, it is from the Lord, so whatever strength He provides, I want to use it wherever and whenever I can!!

    Liked by 1 person

  6. I’m new to your blog but just had to leave a little comment sharing how much I enjoyed this post: made me feel all warm inside! Here’s to the healthiest and happiest 2019 possible, lovely xx

    Liked by 1 person

  7. This was a great post. I just came over from chronic health bloggers facebook page. It’s so easy to forget to enjoy the moment and get caught up in life. I do that all the time especially for those of us with chronic illnesses.
    Hope you have a happy and relaxing new year! 🙂

    Liked by 1 person

    1. Thanks so much Rachel. I hope you have a wonderful New Year full of special moments that outweigh the struggle of chronic illness. Thanks for dropping by and Happy New Year xx

      Liked by 1 person

  8. “None of us are immune from the highs and lows…..how we choose to live with them and through them makes all the difference”……this is why I love your wisdom and your writing so much, Sam! I have shared on the New Year edition of my Monday Magic feature……Happy New Year to you and your family, lovely lady, Claire xxx

    Liked by 1 person

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