Plans? What Plans?

As a New Year gets under way it’s usual to think about the year ahead and set goals both for your personal and business life and perhaps plan holidays or other adventures. I did that for years.

It’s summer in Australia and generally known as a holiday month. Schools are closed and many businesses are either closed or have reduced hours during January. Many of my Specialists are also on holiday, so that allows me a little time out from tests and appointments. I’m so grateful for a mini reprieve from the medical scene.

I’ve always loved the quietness of January, particularly when I was working, as it gave me time to slow down a little and think about the future and the year ahead.

Do You Have Plans?

I’ve been asked a few times over the past week “Do you have any plans for the year?” Since medically retiring that is probably the hardest question anyone could ask me.  Not that it upsets me or that I’m incapable of planning, it’s just that I haven’t been able to make concrete plans now for a number of years.

Well actually that’s not technically correct. I can make them, I just can’t guarantee I can achieve them and the likelihood is, I would have to bail out at the last moment if I did make them.

So as I pondered that question, “What are your plans for the year?”, I had to admit I don’t have any set plans for the New Year.

I have health hurdles and challenges that I intend to get through with as much grace and determination as I can muster. I have purpose in terms of writing and administrating my online support forum.

Outside of those activities, I am living one day at a time, often one step at a time…literally.


Focus On What You Can Do

There is something quite liberating about taking one day at a time. I don’t know what lies ahead, none of us do. So instead of looking ahead for the next goal to be achieved, or the next adventure to come along, I am hoping to enjoy each special moment in each day. It’s all I can do.

Would I like to have a holiday booked? Of course.

Would I like to be able to work? Absolutely.

Would I like to be able to book a restaurant for a special occasion? Definitely.

I’d like to do many things. To say otherwise wouldn’t be true but focusing on what I can’t do isn’t going to help me live well with chronic disease.

Focusing on what I can do, no matter the limitations, helps me remain positive and outward looking.

Some of my moments are so full of pain that I long for those to pass. The moments when I can do a little bit more than the moment before it, I “plan” to enjoy as much as possible.

Living The Dream

I might not be able to set great goals or have planned adventures ahead but I’m still glad it’s a new year. It will be full of surprises whether I plan them or not. It will be full of joys and disappointments too. The best I can do, the best anyone can do, is to embrace each and every experience. If I do that I am embracing life and all that it has to offer.

I might not be able to make concrete plans, thanks to my rare disease, but after living a crazy life, before chronic illness, of copious plans, agendas, schedules, conferences, appointments and constant phone calls… know what? I can breathe, I can relax and just allow the adventure called “life” to unfold as the year rolls along.

So “What are my plans?”. I plan to live as well as possible, within my limitations and enjoy what I can, when I can.

I remember dreaming of having a relaxed, no agenda life when I was working and so exhausted. So I guess you could say I’m living the dream!!


Sam xx


If you’re looking for genuine support, care, understanding & friendship, you are so welcome to join my closed Facebook support forum, Medical Musings with Friends . It’s a safe place to connect with others living with chronic & complex diseases, who truly understand the daily challenges. A warm welcome awaits.

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11 thoughts on “Plans? What Plans?

  1. My plan is to skydive this year. I have to lose a few pounds, but i have already lost a lot and I am close. I have to get approvals from several doctors but i think they will give it and I have to convince my wife. But, I see it might in reach.

    OK the wife art will be difficult, but I have never met a goal I can be talked out of. Oh and reason? Psst,, Reason never enters the discussion, never (I mean out of my mouth anyway).

    Liked by 1 person

  2. So true. All so true. And I especially love the last sentence- ” I remember dreaming of having a relaxed, no agenda life when I was working and so exhausted. So I guess you could say I’m living the dream.”

    How often I used to say the same thing! Ha ha. So here’s to living the dream!

    But seriously, we of all people can look forward with joy and hope to what our beautiful Savior has in store for us, and all who put their trust in His promises!

    See you then, and may our friendship grow into years without end! ❤

    Your American friend across the globe.

    Liked by 1 person

    1. That is beautiful. Thank you. We are truly blessed aren’t we to know our lives are firmly in God’s hands and while our paths may not always be easy they are safe in the assurance that He is with us through the joys and the pain.
      God bless my lovely American Friend 😊💞


  3. So true, Sam. All we can do is take a day at a time and appreciate what we can do that day.
    My most hated question after retiring through ill health was, “what do you do?” I found that so difficult at first to say that I’d had to retire.

    Liked by 1 person

  4. I left a message over the weekend….but have forgotten to hit post! that probably sums this up….planning life is limited by brain fog. I completely get the “what do you do?” followed by “but you’re too young to be retired” when I explain I was medically retired at 39. No agenda now, the odd meeting for groups I belong to, plenty of sofa and TV time. Living the dream? Not really! But I have to remind myself that life isn’t all bad……the skydive sounds like a plan ha, ha, ha, Claire x

    Liked by 1 person

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