Snap, pop and crackle…and just like that I can’t move my back.
I’ve been doing reasonably well so it’s disappointing when my broken body decides to break a little more, but this is life with a crazy bone disease.
I can’t thank my beautiful husband enough for his love and support. When you can’t do anything for yourself love truly conquers all.
This is day 3 of my newest back breaking episode. I’m struggling with the intensity of the raw pain and increased disability.
My husband is struggling too. He’s exhausted, as my decrease in independence means extra work for him. Plus it’s emotionally draining for him to live with, what can only be described as, the “horror” of this type of pain.
By tomorrow it should begin to ease a little if it’s normal pattern evolves. It won’t be gone but a 20% improvement will feel good. Anything more is a huge bonus.
I’ve written before about how thankful I am to have him by my side. Thank you Sweetheart is my love letter to this beautiful man.
I’ve also written about Caring For The Carer from our shared experiences of having my husband as my full-time carer. The tips I’ve outlined, in this Carers blog post, go a long way to ensuring a happy relationship continues in the midst of difficult times.
Thanks Never Seems Enough
In addition to my husband’s physical care for me, I also want to acknowlede the role he plays in my online support forum, Medical Musings with Friends.
Without his ongoing and unconditional support, I would never have been able to establish this forum or continue to manage it for the past 4 years.
He knows how much the members all mean to me. He knows how important it is for me to follow my dreams, my calling, and to have purpose in my life.
While the forum might be my vision and passion, we never do anything in isolation. He is my confidante, he allows me to debrief with him as I shoulder member’s struggles, cares, concerns and celebrate their milestones. He is simply my rock and thank you never seems enough.
The Power Of Caring Love
We should never underestimate the power of love.
It doesn’t have to be romantic love. The love of a friend, a mother or father, a sibling and sometimes even the love shown by a stranger, can have an enormous impact on and in our lives.
Love is patient and kind; love does not envy or boast; it is not arrogant or rude. It does not insist on its own way; it is not irritable or resentful; it does not rejoice at wrongdoing, but rejoices with the truth. Love bears all things, believes all things, hopes all things, endures all things. Love never ends1 Corinthians 13 v 4 (ESV)
This bible verse sums up perfectly the kind of love a carer, whether your lover, friend or stranger, gives us through their unselfish act of looking after our needs.
This kind of care, this kind of love, has healing abilities. It doesn’t mean our pain and symptoms are eradicated when we receive caring love, but it does mean we will relax more and if we allow ourselves to be loved, our pain can be eased.
Sometimes we need to give others permission to care for us. Sometimes we too quickly push people out of our lives. It may be because our conditions embarrass us, or we are fiercely independent.
I totally get it, but if we don’t allow people into our lives who show signs of genuinely wanting to care and even love us, we may miss out on such a wonderful blessing.
Living with a disability is hard work. Doing it alone is even harder and I’m all too aware this is the reality for many.
So, as I’m thankful for the daily love and care I receive, I’m going to be praying others, living with chronic illness, accept the love and care on offer if it’s available, or my hope is someone will come into your life who genuinely wants to show you the power of love.
Look for those who want to care for you. Embrace their love and allow yourself to be embraced.
Love can conquer a lot in its many and various forms.
I’m going to hobble to the kitchen, through my pain, and make my husband a coffee. My carer needs to know he’s loved too and this is a small way for me to show him….albeit a painful way! I’ll achieve it though because of the power of love.
If you’re looking for genuine support, care, understanding and friendship, you are so welcome to join my closed Facebook support forum, Medical Musings with Friends . It’s a safe place to connect with others living with chronic and complex diseases, who truly understand the daily challenges. A warm welcome awaits.
If you prefer an audible blog post, please check out my Podcast, Medical Musings With Sam
I’m a Contributor at “The Mighty”. You can check out my published articles at My Author Page
I also write @ Blogs by Christian Women
If you would like to read a little more about my journey, here’s the link to My Story