Pushing And Pacing With A Progressive Chronic Disease….Courageous Or Stupid?

I have a "Now or Never" philopsophy to life that sometimes gets me into trouble. Well, let's face it....always gets me into trouble! Living with a physical progressive disability involves a lot of pain, lack of mobility and extreme fatigue every day. This kind of disease is constant. It doesn't ebb and flow with flares. … Continue reading Pushing And Pacing With A Progressive Chronic Disease….Courageous Or Stupid?

Little Things Do Matter….Especially When Living With Chronic Illness

We often think of God’s plans for our life in terms of grandiose ideas. We may think the little things in our life are just not as important as the big-ticket items. In my experience, little things do matter in the big scheme of things. When I medically retired 4 years ago, despite being disabled, there … Continue reading Little Things Do Matter….Especially When Living With Chronic Illness

A New Year Promise – Hope In The Midst Of Delights and Despair

“For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future.”  Jeremiah 29 v 11 ( New International Version) I love this verse of scripture. I can’t think of a better verse to meditate upon at the start of a … Continue reading A New Year Promise – Hope In The Midst Of Delights and Despair

It’s Christmas Eve….Chronic Illness Style

"You better watch out You better not cry You better not pout I'm telling you why... Santa Claus is coming to Town!!" It's Christmas Eve!! I think it's always been my most favourite day of the Christmas period ever since I was a young girl. The excitement and anticipation of Christmas Day just around the … Continue reading It’s Christmas Eve….Chronic Illness Style

Is Acceptance Just Resignation?

I wrote this article in February. I was just starting to write a new article on a similar theme but realised this one says it all.

The title I had in mind for a new blog post was “Accept and Adjust”.

Accepting our chronic disease isn’t enough. We have to take the next step to adjust. To create a new life, new ways of doing things. Acceptance doesn’t mean giving in or giving up.

Acceptance means we evolve. We adjust. We grow.

My original article on acceptance discusses this and I share ways that I have made life changing adjustments.

I hope as we head into a New Year, it helps anyone living with a chronic disease or caring for someone who does, review where you are in your acceptance journey.

What can you do differently to start adjusting your life appropriately?

I have some major challenges in 2019 to both accept and adjust to. I look forward to journeying through the New Year with my readers and my forum members, as together we continually accept and adjust to whatever the year presents.

Love and blessings

Sam xx

My Medical Musings

A friend recently posted a question in her Facebook Group, Freedom to Choose, about ways to gain freedom in life, so you can choose how you want to live it.

“What has most helped you to gain freedom in your life to choose exactly how you want to live it?” Jayne Bailey

My response was one word.


Of course I had to follow through with a short sentence because I really can’t stop at one word 😁

Acceptance brings me peace and freedom.

After posting that response, I pondered about whether acceptance was just a state of resigning myself to living with the shackles of my chronic disease. Or was it more than that?


I feel it’s more. To me the word resignation had a defeatist air about it.

Resignation (meaning): A sad feeling of accepting something that you do not like because you cannot easily change it.

View original post 1,074 more words

“Let’s Go Fly A Kite”….Dreaming Dreams Despite Disability

If you love the original Mary Poppins movie, you will be very familiar with one of the songs sung by Dick Van Dyke, "Let's Go Fly A Kite" I've been singing it over the past few days as the lyrics and melody are so uplifting: With tuppence for paper and strings, You can have your … Continue reading “Let’s Go Fly A Kite”….Dreaming Dreams Despite Disability