A “Hallmark Moment”….In Chronic Illness Style

I love celebrating special occasions. I’m a real “Hallmarks moment” kind of girl. Always have been and I suspect I always will be. Cakes, balloons, lots of presents and good food. I love making the person who is celebrating their special day, feel like they are the most important and loved person in the world. … Continue reading A “Hallmark Moment”….In Chronic Illness Style

Where’s The “Off The Charts” Rule Book?

(As published on The Mighty) What are the rules for living with a chronic illness or rare disease? Where can I find the rule book to help me manage, especially when all my symptoms are flaring and are "Off The Charts"? This is the question my husband and I have been contemplating over recent weeks. How do … Continue reading Where’s The “Off The Charts” Rule Book?

I Love My Phone!! It’s A Chronic Illness Lifeline

When I was working my husband always used to stir me about having my mobile  phone strapped to my ear, or in my hand, almost 24/7. He wasn't exaggerating either! The other night while I was lying in bed frantically tapping away on my phone screen, I paused for a moment and looked up at … Continue reading I Love My Phone!! It’s A Chronic Illness Lifeline

It’s OK To Take An Online Break

One of the wonderful things living with a chronic disease has brought into my life, is finding new networks and friends in the chronic illness and blogging communities. Before becoming disabled and unable to work, I had no idea about blogging or online support forums. I never even had a Facebook account. Fast forward to … Continue reading It’s OK To Take An Online Break

Dipping My Toe In The World of Vlogging

For some time I've really admired people who Vlog. It's such a great way to interact with followers and convey, in an easy relaxed way, a message which could get lost in the written word of blogging. It's also terrifying! I've always been used to Public Speaking throughout my working life. Somehow that was different. … Continue reading Dipping My Toe In The World of Vlogging

Breaking Free From A Birthday Bastillion

July 14th is Bastille Day. It also happens to be my birthday. I love all things French so I quite like sharing my birthday with such an important national day of celebration and remembrance for France. It is the anniversary of the storming of the Bastille and the start of the French Revolution. So What … Continue reading Breaking Free From A Birthday Bastillion

The Twists And Turns of Chronic Illness Life

Life isn't always straight forward. A bit of a cliche I know, but it's so true! 3 years ago I sat in pain with 2 broken legs, recovering from 2 major surgeries 8 weeks apart. I was facing a future filled with so many "unknown" elements. At that moment, "Life isn't straight forward", is what came … Continue reading The Twists And Turns of Chronic Illness Life