Living A “Simply Special” Life, Despite Chronic Illness, Despite COVID-19

Living with chronic and disabling disease requires a complete change of lifestyle, a complete change of thinking. Gone are the days of waking up in the morning and jumping out of bed to have a quick breakfast, get showered and dressed, head to work or some fun planned day full of anticipated activities. Losses are … Continue reading Living A “Simply Special” Life, Despite Chronic Illness, Despite COVID-19

Sending The “What Ifs” Of Life Packing

What if? What if my pain is worse tomorrow? What if I can’t sleep? What if I have a reaction to my new medication? What if my condition worsens? What if I contract COVID-19? What if my friends or family won’t understand why I need to continue to self isolate when pandemic restrictions are lifted? … Continue reading Sending The “What Ifs” Of Life Packing

Taking A Professional Approach With Your Medical Team

Growing up I was often referred to as “Pollyanna” as I naturally played the glad game, always looking for the positive in a situation. I can’t tell you how grateful I am that I was born with that personality trait given the health issues that have been thrown at me. As I moved into adulthood … Continue reading Taking A Professional Approach With Your Medical Team

As I Lay Me Down To Sleep….Who Am I Kidding!!

Sometimes laughter is the best medicine, especially when chronic illness turns the simple act of going to bed, into a circus act. I'm no poet, but as my husband and I recovered from last night's antics over our morning coffee, our conversation ignited a tiny bit of poetic creativity: As I lay me down to … Continue reading As I Lay Me Down To Sleep….Who Am I Kidding!!

The Ups And Downs Of Everyday Life Plus An Extraordinary Event!

I love turning over the calendar at the beginning of a new month. I have a pretty wall calendar in my study, so I look forward to revealing a new picture on the morning of the 1st day. It's a symbolic act in some regards, of saying goodbye to the old month, the good and … Continue reading The Ups And Downs Of Everyday Life Plus An Extraordinary Event!