I'm so excited to share with you my interview as a Guest on "I Am Not My Pain Podcast. This is part one, of a two part interview. I was so honoured to be invited by Melissa to talk about my health story, my blog, my book, my forum and even more importantly, how I … Continue reading My Interview as a Guest on, “I Am Not My Pain Podcast” …..With Host Melissa Adams
Some dates are forever etched in our memories. I have a few but there are two I will never forget. October 6th 2014 is the first. It was the day my femur broke. It was a life changing day. A day that would start me on a journey with a rare bone disease, so rare that … Continue reading A Year Later…One Step, Two Steps…Will There Be A Third?
I’m so excited to announce my book is now widely available, across Australia and the globe, and published by ImagineWe Publishers. The book is a collection of my most popular blog posts, with new content included as I share my memoirs. It has been a lifelong dream to write a book and I feel incredibly blessed … Continue reading My Medical Musings…..The Book Is Available Now
(As published on The Mighty) What are the rules for living with a chronic illness or rare disease? Where can I find the rule book to help me manage, especially when all my symptoms are flaring and are "Off The Charts"? This is the question my husband and I have been contemplating over recent weeks. How do … Continue reading My Four Day Rule
I'm lying on my bed, trying to take deep breaths to cope with the excruciating pain in my glands. It's like the"mumps" virus. I look like a bullfrog. It's not a virus, it's just blocked glands due to Sjogren's disease. It will pass but it will take a few days, or so has been my … Continue reading Chronically Content
I awoke to the sound of rain pouring down, and the sky was as black as the ace of spades. My body, as is normal, was screaming at me, as lying in bed for 6 hours causes every joint to seize, and my broken bones burn. I slowly twisted my legs off the bed and … Continue reading “Grief is the price we pay for love.” Queen Elizabeth II
There is something good in every day. Is there? Is that even a possible concept for those of us who have chronic diseases? The initial response from the chronic illness community is likely to be a resounding "No". Pain, procedures, lack of sleep, lack of understanding, countless medical appointments and tests, chronic fatigue, lack of … Continue reading There is Something Good in Every Day…Even With Chronic Disease
Chronic Disease is a tough cross to bear. There is no denying it.Having a cheerful disposition while writhing in pain, or dealing with news of a chronic illness diagnosis, may sound like an impossible dream.I can see my readers nodding and saying “you’ve got that right Sam!”Stay with me on this though….. we need to … Continue reading Optimistically Grateful, Despite Chronic Illness
My beautiful Dad passed away nearly 17 months ago. The initial weeks after his passing saw me encompassed in raw grief. The kind of grief constantly creeping up on you, and opening the flood gate of tears, when you least expect it. The kind of grief where you grapple to make sense of it all. When … Continue reading “Good Grief!”
"I'm going to be your clown for the day" These are the words my husband greeted me with, as I munched on my cornflakes. I knew instantly why, but I imagine his statement will require some explaining. I had a crazy idea I could take on a bigger workload. As my regular readers will know, … Continue reading My Chronic Illness Clown For The Day!