(As published on The Mighty) What are the rules for living with a chronic illness or rare disease? Where can I find the rule book to help me manage, especially when all my symptoms are flaring and are "Off The Charts"? This is the question my husband and I have been contemplating over recent weeks. How do … Continue reading Where’s The “Off The Charts” Rule Book?
When I was working my husband always used to stir me about having my mobile phone strapped to my ear, or in my hand, almost 24/7. He wasn't exaggerating either! The other night while I was lying in bed frantically tapping away on my phone screen, I paused for a moment and looked up at … Continue reading I Love My Phone!! It’s A Chronic Illness Lifeline
No one is exempt from waiting. As the world continues to grapple with a global health pandemic, we are all waiting. Waiting for it to be over. Waiting for a vaccine against Coronavirus to become available. Waiting for restrictions to be lifted. Waiting to see family and friends again, who have become separated from us … Continue reading Waiting, Waiting, Waiting!
I hope you enjoy my next VLOG. Today I'm chatting about "Fear of Change" for those living with chronic illness. It's a huge topic and I'm only scratching the surface in this VLOG. I hope it starts to get you thinking about how to tackle the early stages of approaching a desired change. Change is … Continue reading “Fear Of Change” …..My New VLOG
One of the wonderful things living with a chronic disease has brought into my life, is finding new networks and friends in the chronic illness and blogging communities. Before becoming disabled and unable to work, I had no idea about blogging or online support forums. I never even had a Facebook account. Fast forward to … Continue reading It’s OK To Take An Online Break
For some time I've really admired people who Vlog. It's such a great way to interact with followers and convey, in an easy relaxed way, a message which could get lost in the written word of blogging. It's also terrifying! I've always been used to Public Speaking throughout my working life. Somehow that was different. … Continue reading Dipping My Toe In The World of Vlogging
July 14th is Bastille Day. It also happens to be my birthday. I love all things French so I quite like sharing my birthday with such an important national day of celebration and remembrance for France. It is the anniversary of the storming of the Bastille and the start of the French Revolution. So What … Continue reading Breaking Free From A Birthday Bastillion
A cheerful look brings joy to the heart, and good news health to the bones. Proverbs 15:30 It's a gorgeous morning. The sun is shining, the birds are singing. I can hear neighbours chatting as they enjoy a morning walk and a cool gentle breeze is blowing through my bedroom window. I'm resting on my … Continue reading A Cheerful Approach To A Chronic Situation
Life isn't always straight forward. A bit of a cliche I know, but it's so true! 3 years ago I sat in pain with 2 broken legs, recovering from 2 major surgeries 8 weeks apart. I was facing a future filled with so many "unknown" elements. At that moment, "Life isn't straight forward", is what came … Continue reading The Twists And Turns of Chronic Illness Life
Hi Everyone, Firstly I want to thank those who nominated me for three WEGO Health Awards for 2020. I am so honoured and grateful as this is an amazing opportunity to raise awareness of my Facebook Support Forum, Medical Musings with Friends , and reach out to more people in need of genuine care and support. So, … Continue reading WEGO Health Awards Announcement…Thank You So Much