I thought I was pacing at a level which couldn't possibly get any slower. My last blog post gave you a Peek Through My Window Of Pain. It details how slowly I need to move, how limited my physical functionality is. Despite my limitations, I have been comfortable with my daily routine, with my ability … Continue reading My Burst Bubble Of Contentment
Pain can’t just be ignored. Disease can’t just be ignored. People with disease and pain can’t just be forgotten. I’m not alone in suffering horrific daily pain. So many in society struggle every day. Some manage to work or interact with the wider community in some way. Others like me, live a permanently reclusive life … Continue reading A Peek Through My Window Of Pain
Snap, pop and crackle…and just like that I can't move my back. I've been doing reasonably well so it's disappointing when my broken body decides to break a little more, but this is life with a crazy bone disease. I can't thank my beautiful husband enough for his love and support. When you can't do … Continue reading Love Conquers All….Even Acute and Chronic Pain
I love turning over the calendar at the beginning of a new month. I have a pretty wall calendar in my study, so I look forward to revealing a new picture on the morning of the 1st day. It’s a symbolic act in some regards, of saying goodbye to the old month, the good and … Continue reading COVID, Chaos and Calm
I never imagined feeling so excited about receiving an email with the subject header: "Your Wig Is On It's Way" I am, surprisingly, incredibly excited. It's time to embrace what has been one of the most challenging consequences of my chronic illness. Last year I began to face significant hairloss. To say it was confronting … Continue reading Wig On It’s Way!
I've always loved all things French so I quite like sharing my birthday with such an important national day of celebration and remembrance for France...July 14th, Bastille Day! It is the anniversary of the storming of the Bastille and the start of the French Revolution. So What Is A Bastillion? A bastillion is a fortress. … Continue reading Birthday Blues or Birthday Balloons?
Hi Everyone,Firstly I want to thank those whonominated me for eight WEGO Health Awards for 2021. I am so honoured and grateful as this is an amazing opportunity to raise awareness of my Facebook Support Forum, Medical Musings with Friends , and reach out to more people globally in need of genuine care and support. So, now … Continue reading WEGO Health Awards Announcement…Thank You So Much
When we think of Chronic Disease, we wouldn't usually have happy thoughts or find ourselves looking forward to a bright future. Fear, horror, uncertainty and grief are generally the normal response. However, the reality of living a chronic illness life can be quite liberating, as I've surprisingly found over the past 7 years. One of … Continue reading You’ve Created A “Chronic Illness Career”….Don’t Forget To Have A Weekend!
I can cope with most things about my disability. I'm not saying it's easy, it's far from easy. I have though, over the years, developed a toolkit of chronic disease management strategies which I've written about previously. These help me greatly on a daily basis: My Chronic Disease Management PlanBody Behaving Badly) My pain is … Continue reading Sleepless Night Strategies
Many of us who have had multiple abdominal surgeries can find we later have issues with adhesions. I was reminded of this the other day when I was talking to someone about my story. I was further reminded yesterday of my abdominal adhesions, when I spent 8 hours in crippling pain, due to a bowel/stoma … Continue reading A Sticky Story!!