Only 3 months ago I was writing about how "surgery can't come soon enough" We knew even then there was a risk of surgery failing. We knew my bone disease was behaving erratically and had a mind of its own. Despite the risks of surgery failure we just didn't have a choice. We had to … Continue reading Here We Go Again…..Spinal Surgery Take Two!
Life can hold many wonderful adventures. Travel, work, days out, drives in the countryside, eating at wonderful restaurants and cafes, visits to family and friends. The list is endless. The opportunities to broaden your horizons are plentiful. What If You Are Housebound? What if you can't do any of those things? What if you are … Continue reading Home Sweet Home…My Chronic Illness Sanctuary
There are times in my chronic illness adventure when I'm not sure what my next move should be. Symptoms worsen, test results reveal disease progression and my energy and desire to fight wanes. My medical team is very concerned but also cautious. Intervention can make things worse and every time I have surgery I'm never … Continue reading Chronic Illness Chess – Attack or Surrender
I'm a huge fan of pacing. It's number one on my list of key chronic illness/ pain management strategies. Pacing doesn't remove symptoms or take all my pain away. It does help to reduce some discomfort and reduces the risk of me causing an escalation of more crippling issues. Well, usually it does that!! My … Continue reading Sometimes A “Sick Day” Is Necessary, Even If You Are Already Chronically Ill
You would be forgiven for thinking this is a Valentine's Day post given the title I've chosen. Please rest assured it's not. It's a continuation of my musings about acceptance being the gateway to a new life. Acceptance is not a sad resignation, it's the pathway to peace, happiness and freedom from prolonged grief. For me … Continue reading Old Loves, New Loves
How do you continue to live life to the full when your health limits everything you do? I have found two things really help me live a fulfilled life despite uncertainty, pain and disappointment
I have had my nose buried in my phone for the past three months. Well ok, it's always buried in it, but this has been excessive and it's all because I've been on a mission. Mission Impossible My mission has been to find a way to sell our home, pay off our mortgage and find … Continue reading Accepting A New Adventure…Chronic Illness Style