When you've lived with Chronic Illness for a number of years, at some point, you adjust to a new way of living. You eventually find a new norm. While you might expect a few highs, lows and some disease flares along the way, generally life evolves into a settled and comfortable pattern. Until it suddenly, … Continue reading “Would You Like A Second Opinion?”… Surreal And Scary!
Inspirational Quotes surround us in today’s world of Facebook, Twitter, Pinterest and Instagram. Throw away lines are designed to both challenge and motivate us. Do they, or are we overwhelmed by the many thoughts, sayings, likes and shares that crowd our day? Do we really take time to reflect and ponder and listen to our … Continue reading A Day Of Pondering Is Good For The Mind, Body And Soul
Have you looked at your Calendar at the start of a month and thought to yourself, " What on earth was I thinking. I can't possibly do all that!" I'm sure I'm not alone in this exclamation. As I scrolled through my calendar on my phone for the month ahead, I felt physically sick. It … Continue reading Calendar Chaos
I’m currently in an extreme pain cycle (that’s a civilized way of putting it) My bone disease is progressing and my entire skeleton seems to be under attack. Put plainly, I hurt! Pain Is So Personal Pain is such a highly personal thing and while we can all relate to varying levels of high pain, … Continue reading Pain Is So Personal
I can cope with most things about my disability. I'm not saying it's easy. It's far from easy but I have a toolkit of chronic disease management strategies, I've written about in the past, that help me on a daily basis......(My Chronic Disease Management Plan and Body Behaving Badly) My pain is unrelenting during the day but … Continue reading Sleepless Night Strategies
For those of us with Chronic Diseases, who are disabled to a point where getting out and about is difficult, our phones can be our lifeline. Many of us can no longer work and have given up exciting and rewarding careers because of our health. Connecting with others through blogging, writing, managing or participating in online support forums, provides opportunities to connect with the wider community, in a meaningful way, from our homes or hospital beds.
Everyone wants to present the best version of themselves. We all have an image of how we'd like to look and often the image in our minds, falls short of the reality we see in the mirror. Of course some mirrors give a very distorted view. I have in my home what I call "nice … Continue reading A “Weighty” Conversation