There are times in my chronic illness adventure when I'm not sure what my next move should be. Symptoms worsen, test results reveal disease progression and my energy and desire to fight wanes. My medical team is very concerned but also cautious. Intervention can make things worse and every time I have surgery I'm never … Continue reading Chronic Illness Chess – Attack or Surrender
I'm a huge fan of pacing. It's number one on my list of key chronic illness/ pain management strategies. Pacing doesn't remove symptoms or take all my pain away. It does help to reduce some discomfort and reduces the risk of me causing an escalation of more crippling issues. Well, usually it does that!! My … Continue reading Sometimes A “Sick Day” Is Necessary, Even If You Are Already Chronically Ill
You would be forgiven for thinking this is a Valentine's Day post given the title I've chosen. Please rest assured it's not. It's a continuation of my musings about acceptance being the gateway to a new life. Acceptance is not a sad resignation, it's the pathway to peace, happiness and freedom from prolonged grief. For me … Continue reading Old Loves, New Loves
How do you continue to live life to the full when your health limits everything you do? I have found two things really help me live a fulfilled life despite uncertainty, pain and disappointment
I have had my nose buried in my phone for the past three months. Well ok, it's always buried in it, but this has been excessive and it's all because I've been on a mission. Mission Impossible My mission has been to find a way to sell our home, pay off our mortgage and find … Continue reading Accepting A New Adventure…Chronic Illness Style
I have a "Now or Never" philopsophy to life that sometimes gets me into trouble. Well, let's face it....always gets me into trouble! Living with a physical progressive disability involves a lot of pain, lack of mobility and extreme fatigue every day. This kind of disease is constant. It doesn't ebb and flow with flares. … Continue reading Pushing And Pacing With A Progressive Chronic Disease….Courageous Or Stupid?
We often think of God’s plans for our life in terms of grandiose ideas. We may think the little things in our life are just not as important as the big-ticket items. In my experience, little things do matter in the big scheme of things. When I medically retired 4 years ago, despite being disabled, there … Continue reading Little Things Do Matter….Especially When Living With Chronic Illness