When you've lived with chronic disease for a while, you'll inevitably arrive at a stage in your journey, where you feel you've come full circle. Perhaps, you feel you are constantly going around in circles. This is often the experience many patients have when first seeking a diagnosis. It can be a confusing and distressing … Continue reading Riding The Chronic Illness Carousel
I can’t believe today, on the 11th November, my beloved stoma, affectionately called Rudolph, is turning 6! For those of you without a stoma it may seem a strange thing to celebrate. While it was life changing, it was also life saving and I will be forever grateful for the day of my stoma surgery. … Continue reading Happy 6th Stomaversary to Rudolph and Me!
When you've lived with Chronic Illness for a number of years, at some point, you adjust to a new way of living. You eventually find a new norm. While you might expect a few highs, lows and some disease flares along the way, generally life evolves into a settled and comfortable pattern. Until it suddenly, … Continue reading “Would You Like A Second Opinion?”… Surreal And Scary!
We all make decisions every day. Big decisions, small decisions. Some we are aware of and some are just automatic. When I had reasonable health, I would spend my days making business and personal decisions without much effort. Some might have kept me awake at night but not many. I never had to think about … Continue reading Tackling Decisions Chronic Illness Style
Sometimes, despite already dealing with an established list of chronic diseases, our bodies decide to throw us a curveball. Over the past 7 weeks I've been dealing with a tongue ulcer from hell. It's like nothing I've ever seen or had before. Any mouth or tongue ulcers I've had in the past have cleared up … Continue reading A Tongue Testing Tale
Late last year, as the New Year approached, I decided to dare to dream and wrote a blog post, Let's Go Fly A Kite. The idea was to list a few things I would love to do but felt were way out of reach or were just pure imagination. I also had a small realistic list. … Continue reading My Very Own “Escape To The Country”
It's so different from who I was physically but I'm still the same person with the same needs, same loves, same likes, same character.