Riding The Chronic Illness Carousel

When you've lived with chronic disease for a while, you'll inevitably arrive at a stage in your journey, where you feel you've come full circle. Perhaps, you feel you are constantly going around in circles. This is often the experience many patients have when first seeking a diagnosis. It can be a confusing and distressing … Continue reading Riding The Chronic Illness Carousel

Happy 6th Stomaversary to Rudolph and Me!

I can’t believe today, on the 11th November, my beloved stoma, affectionately called Rudolph, is turning 6! For those of you without a stoma it may seem a strange thing to celebrate. While it was life changing, it was also life saving and I will be forever grateful for the day of my stoma surgery. … Continue reading Happy 6th Stomaversary to Rudolph and Me!

“Would You Like A Second Opinion?”… Surreal And Scary!

When you've lived with Chronic Illness for a number of years, at some point, you adjust to a new way of living. You eventually find a new norm. While you might expect a few highs, lows and some disease flares along the way, generally life evolves into a settled and comfortable pattern. Until it suddenly, … Continue reading “Would You Like A Second Opinion?”… Surreal And Scary!

Tackling Decisions Chronic Illness Style

We all make decisions every day. Big decisions, small decisions. Some we are aware of and some are just automatic. When I had reasonable health, I would spend my days making business and personal decisions without much effort. Some might have kept me awake at night but not many. I never had to think about … Continue reading Tackling Decisions Chronic Illness Style