I’ve Launched My Podcast!!….Introducing “Medical Musings With Sam”

Hi Everyone ,I've done it...I've taken a leap of faith and started my Podcast.My new Podcast, Medical Musings with Sam, is now live on Spotify, Podcasters and my host app, Anchor.It includes the trailer and Season One with five full episodes. I'm so looking forward to sharing an audible version of my most popular blogs … Continue reading I’ve Launched My Podcast!!….Introducing “Medical Musings With Sam”

Musings About My Future, While Waiting For The Morning Fog To Lift

I’m not talking about the weather, it is the most glorious day outside. I'm sitting in my favourite chair doing what I love most....writing. I really should make the extra effort to get out of my armchair, grab my crutches, grab my phone, grab my coffee and go outside……hmmm, can’t quite achieve that! Not with … Continue reading Musings About My Future, While Waiting For The Morning Fog To Lift

A Full And Fulfilled Chronic Illness Life

How do you continue to live life to the full when your health limits everything you do? How do you cope with waiting for a reprieve in symptoms when, the reality is, no reprieve is coming? I’m not going to say there are easy answers to these questions because there definitely are not. It’s hard. … Continue reading A Full And Fulfilled Chronic Illness Life

“Where There’s A Will There’s A Way”….Is It Really That Easy?

I was loading my dishwasher this morning and fighting with a plate that refused to fit in. It wasn't really the plates fault. I was in severe lower back pain and trying to get the task over as quickly as possible. I was also trying to fit way too much into this particular load.....as you … Continue reading “Where There’s A Will There’s A Way”….Is It Really That Easy?

Healing Comes In Many Forms…..Even With A Progressive Disease

Some dates are forever etched in our memories. I have a few but one is a day I will never forget October 6th 2014. It’s the day my femur broke.   It was a life changing day. A day that would start me on a journey with a rare bone disease, so rare that even Specialists would … Continue reading Healing Comes In Many Forms…..Even With A Progressive Disease

Managing The Chronic Disease Curveball

At the start of a new week or month, I have a, “Celebrations Milestones and Memories” segment on my Facebook Forum, Medical Musings with Friends. The idea is to take a quiet moment, to think about what lies ahead. We muse about how we are feeling, what we are concerned about, what we are excited about. … Continue reading Managing The Chronic Disease Curveball

Spinal Shenanigans….It’s A Little Complicated

It's official! My spine is full of shenanigans and my Specialists can't quite find a way to fix it, not without creating even more shenanigans. My spine is completely unstable at l4/l5. L3/l4 isn't far behind it but the pain I experience from the severity of the instability at l4/l5, smothers pain I would be … Continue reading Spinal Shenanigans….It’s A Little Complicated

A “Hallmark Moment”….In Chronic Illness Style

I love celebrating special occasions. I’m a real “Hallmarks moment” kind of girl. Always have been and I suspect I always will be. Cakes, balloons, lots of presents and good food. I love making the person who is celebrating their special day, feel like they are the most important and loved person in the world. … Continue reading A “Hallmark Moment”….In Chronic Illness Style

Where’s The “Off The Charts” Rule Book?

(As published on The Mighty) What are the rules for living with a chronic illness or rare disease? Where can I find the rule book to help me manage, especially when all my symptoms are flaring and are "Off The Charts"? This is the question my husband and I have been contemplating over recent weeks. How do … Continue reading Where’s The “Off The Charts” Rule Book?