"Tis the season to be jolly, fa la la la la, la la la la" 🎵🎶 Is it? Do you feel jolly or do you feel exhausted, stressed? Do you feel overwhelmed by your chronic illness, which refuses to understand Christmas is fast approaching, and you really could do with feeling healthy for the festive … Continue reading Creating Comfort And Joy At Christmas
I was once called "Stoic", when I was working, because of the way I got on with my chronic health issues without fuss. I was always cheerful, smiling and putting others first. I kept working full time with that stoic attitude and nature, until my body physically would no longer let me. Even with a … Continue reading Stoic By Nature…..Just Not For A Moment!
I love that friends, family and even neighbours often think of me and ask how I am, or say they hope I am feeling better. It lets me know that I am cared for and not forgotten, even though my disease has pretty much caused me to live the life of a recluse over recent … Continue reading Not All Stories Can Be Champagne And Roses
(As published on The Mighty) What are the rules for living with a chronic illness or rare disease? Where can I find the rule book? This is the question my husband and I have been contemplating over recent weeks. How do we know when we should worry and seek medical attention? How do we know if … Continue reading My Four-Day Rule
When you've lived with Chronic Illness for a number of years, at some point, you adjust to a new way of living. You eventually find a new norm. While you might expect a few highs, lows and some disease flares along the way, generally life evolves into a settled and comfortable pattern. Until it suddenly, … Continue reading “Would You Like A Second Opinion?”… Surreal And Scary!
Inspirational Quotes surround us in today’s world of Facebook, Twitter, Pinterest and Instagram. Throw away lines are designed to both challenge and motivate us. Do they, or are we overwhelmed by the many thoughts, sayings, likes and shares that crowd our day? Do we really take time to reflect and ponder and listen to our … Continue reading A Day Of Pondering Is Good For The Mind, Body And Soul
I’m currently in an extreme pain cycle (that’s a civilized way of putting it) My bone disease is progressing and my entire skeleton seems to be under attack. Put plainly, I hurt! Pain Is So Personal Pain is such a highly personal thing and while we can all relate to varying levels of high pain, … Continue reading Pain Is So Personal