“Do I Get Fries With That?” Dealing With Chronic Illness Side Dishes!

I thought my body couldn't possibly surprise me anymore. I thought I had a good handle on the reality of my diseases and on so many levels I do! I wrote a blog post recently, called "Sending The What Ifs Of Life Packing" It's all about focusing on "What Is" rather than "What If". So … Continue reading “Do I Get Fries With That?” Dealing With Chronic Illness Side Dishes!

The “Chronic Illness” Law of Diminishing Returns

My title might suggest a study in economics but rest assured it is not where I am heading with this. The Law of Diminishing Returns Refers to a point at which the level of  benefits gained is less than the amount of money or energy invested. When you live with chronic illness, over time your expectations, … Continue reading The “Chronic Illness” Law of Diminishing Returns

Living A “Simply Special” Life, Despite Chronic Illness, Despite COVID-19

Living with chronic and disabling disease requires a complete change of lifestyle, a complete change of thinking. Gone are the days of waking up in the morning and jumping out of bed to have a quick breakfast, get showered and dressed, head to work or some fun planned day full of anticipated activities. Losses are … Continue reading Living A “Simply Special” Life, Despite Chronic Illness, Despite COVID-19

Sending The “What Ifs” Of Life Packing

What if? What if my pain is worse tomorrow? What if I can’t sleep? What if I have a reaction to my new medication? What if my condition worsens? What if I contract COVID-19? What if my friends or family won’t understand why I need to continue to self isolate when pandemic restrictions are lifted? … Continue reading Sending The “What Ifs” Of Life Packing

A Carousel Of Memories And Moments

One of my earliest childhood memories is being on the passenger ship "Aurelia". I was 3 years of age and embarking on a journey that would change the entire course of my life. I was migrating from the United Kingdom (London) to Fremantle, Western Australia with my parents and my older brother. Fuzzy and Special Memories … Continue reading A Carousel Of Memories And Moments

Climbing Mountains With My Chronic Illness Friends

After a week of appointments and feeling absolutely shattered, I looked at my calendar for the next day and it revealed a blank page. I breathed a huge sigh of relief. Most of my days are a blank page. This particular week had been an exception to the rule and I was suffering for it. … Continue reading Climbing Mountains With My Chronic Illness Friends

It’s OK To Be Tired

I'm tired.....so tired! I'm not depressed, I'm not sad, I'm just tired. My body is exhausted from fighting with itself daily. It can't even get a divorce from it's rare disease and walk away to a struggle free life. I'm just tired. Tired of medication. All the planning and administration, that goes into a meals … Continue reading It’s OK To Be Tired