My Latest Podcast…A Dream Realised…I’m An Author!

My Latest Podcast episode is finally recorded... It's been a while between episodes but I've finally found time to record one!!As my book "My Medical Musings" is set to officially launch on May 20th, I share with you my excitement at achieving a lifelong dream of becoming an Author....and more importantly I encourage my listeners … Continue reading My Latest Podcast…A Dream Realised…I’m An Author!

Caring For The Carer

Many people with Chronic Illness require full time Carers. Often that role is filled by loved ones. Our husbands, wives, life partners, siblings, parents, children, even grandparents.Watching a loved one suffer is just so confronting. No one wants to see someone writhing in pain, or watch the person they're caring for lose their ability to … Continue reading Caring For The Carer

Self Talk….”It’ll Do” And Other Chronic Illness Chat Lines

It’ll do”“It’s good enough”“You’re doing so well”” Good job”“Time to rest”“Not going to happen today”“Maybe tomorrow”In my previous life, by which I mean life before chronic illness, I always had a whole range of “self talk” language helping me achieve my goals.They were all positive, affirmative statements like;“you can do it, you’ve got this, keep … Continue reading Self Talk….”It’ll Do” And Other Chronic Illness Chat Lines

Sailing Through Storms

I’m not afraid of storms, for I’m learning how to sail my ship.Louisa May Alcott (Author of “Little Women”) I always think we have a choice when faced with “storms of life”.We can bunker down and wait for the storm to pass, or we can continue to live, albeit with impediments, and find a way … Continue reading Sailing Through Storms

Just Because It’s Over, Doesn’t Mean It’s Over

What a week! Parts of Australia, in South East Queensland and New South Wales, are experiencing catastrophic flooding. It's due to an extreme, unpredictable weather system we are calling a "rain bomb". One reporter said the rain was of "biblical" proportion and I have to agree. I was lying in bed listening to it's intensity … Continue reading Just Because It’s Over, Doesn’t Mean It’s Over

Why Is It Important Your Rare Disease Has A Name? ….It Gives You Validation!

We all know how important it is to be validated. For those of us with rare diseases, or any undiagnosed chronic illness, being validated often means having a specific name for our diseases. Sometimes though there are diseases, recognised by the medical profession, that simply don't have names. They are often called "idiopathic" as they … Continue reading Why Is It Important Your Rare Disease Has A Name? ….It Gives You Validation!

Stones or Balloons?

Ok, the title of this blog post is probably more confusing than it is enlightening. Let's go for "intriguing" and hopefully together we will unpack it's hidden treasures. I was listening to a sermon on Sunday morning and the preacher made an interesting comment, causing me to listen a little more intently than I had … Continue reading Stones or Balloons?

The Most Important Decision When Living With Chronic Illness

We all make decisions every day. Big decisions, small decisions. Some we are aware of and some are just automatic. When I had reasonable health, I would spend my days making business and personal decisions without much effort. Some might have kept me awake at night but not many. I never had to think about … Continue reading The Most Important Decision When Living With Chronic Illness

Let’s Make Some Lemonade!

We all know the saying; "When life gives you lemons, use them to make lemonade" It conjures up the notion of strength, determination, optimism, resourcefulness, resilience. All characteristics I've drawn on to deal with the "chronic illness lemons" continuously thrown at me. My lemons often feel like tennis balls in one of those practice machines. … Continue reading Let’s Make Some Lemonade!

As I Lay Me Down To Sleep…. Who Am I Kidding!

Sometimes laughter is the best medicine, especially when chronic illness turns the simple act of going to bed, into a circus act.I’m no poet, but as my husband and I recovered from last night’s antics over our morning coffee, our conversation ignited a tiny bit of poetic creativity:As I lay me down to sleepMy naughty … Continue reading As I Lay Me Down To Sleep…. Who Am I Kidding!