I thought I was pacing at a level which couldn't possibly get any slower. My last blog post gave you a Peek Through My Window Of Pain. It details how slowly I need to move, how limited my physical functionality is. Despite my limitations, I have been comfortable with my daily routine, with my ability … Continue reading My Burst Bubble Of Contentment
Pain can’t just be ignored. Disease can’t just be ignored. People with disease and pain can’t just be forgotten. I’m not alone in suffering horrific daily pain. So many in society struggle every day. Some manage to work or interact with the wider community in some way. Others like me, live a permanently reclusive life … Continue reading A Peek Through My Window Of Pain
I love turning over the calendar at the beginning of a new month. I have a pretty wall calendar in my study, so I look forward to revealing a new picture on the morning of the 1st day. It’s a symbolic act in some regards, of saying goodbye to the old month, the good and … Continue reading COVID, Chaos and Calm
I never imagined feeling so excited about receiving an email with the subject header: "Your Wig Is On It's Way" I am, surprisingly, incredibly excited. It's time to embrace what has been one of the most challenging consequences of my chronic illness. Last year I began to face significant hairloss. To say it was confronting … Continue reading Wig On It’s Way!
I can cope with most things about my disability. I'm not saying it's easy, it's far from easy. I have though, over the years, developed a toolkit of chronic disease management strategies which I've written about previously. These help me greatly on a daily basis: My Chronic Disease Management PlanBody Behaving Badly) My pain is … Continue reading Sleepless Night Strategies
I love life's little challenges. I love problem solving and turning obstacles into opportunities. I love putting a positive spin on what would otherwise be a very negative situation. I've always done this, both in my personal and my working life. So, chronic disease really wasn't going to change my approach to finding a way … Continue reading The Non Negotiable Chronic Illness Rule
In 2018, as the New Year approached, I decided to dare to dream and wrote a blog post, Let's Go Fly A Kite. The idea was to list a few things I would love to do but felt were way out of reach or were just pure imagination. I also had a small realistic list. … Continue reading My Very Own “Escape To The Country”
You’re probably wondering what on earth the title to this blog post means. How can you be “Blissfully Broken”? No I haven’t gone mad…..ok, maybe just a little! I’m musing about my life as it stands today. When chronic illness is complex it’s easy to feel overwhelmed. We can be diagnosed with so many adjunct … Continue reading Blissfully Broken
(In loving memory of my precious Dad, who passed away peacefully on Easter Monday) One of my earliest childhood memories is being on the passenger ship "Aurelia". I was 3 years of age and embarking on a journey that would change the entire course of my life. I was migrating from the United Kingdom to Australia … Continue reading A Carousel Of Memories And Moments
As the Coronavirus pandemic continues to impact our lives globally, important personal milestones and celebrations still scatter our calendars. Events we looked forward to and perhaps been planning to celebrate long before COVID-19 became part of our daily vocabulary. Often these events, such as birthdays and anniversaries, or soon to arrive Easter, are opportunities for … Continue reading Easter Celebrations COVID Style
My Medical Musings 