My title might suggest a study in economics but rest assured it is not where I am heading with this. The Law of Diminishing Returns Refers to a point at which the level of benefits gained is less than the amount of money or energy invested. When you live with chronic illness, over time your expectations, … Continue reading The “Chronic Illness” Law of Diminishing Returns
Living with chronic and disabling disease requires a complete change of lifestyle, a complete change of thinking. Gone are the days of waking up in the morning and jumping out of bed to have a quick breakfast, get showered and dressed, head to work or some fun planned day full of anticipated activities. Losses are … Continue reading Living A “Simply Special” Life, Despite Chronic Illness, Despite COVID-19
What if? What if my pain is worse tomorrow? What if I can’t sleep? What if I have a reaction to my new medication? What if my condition worsens? What if I contract COVID-19? What if my friends or family won’t understand why I need to continue to self isolate when pandemic restrictions are lifted? … Continue reading Sending The “What Ifs” Of Life Packing
"Shall we, shan't we?" "Do we need that? Should we part with those?" "Will this piece fit? Oh no, it will just look all wrong there!" A year ago, this conversation had been on a continuum between my husband and I for weeks. Yes, we were moving house and it was the reason why we … Continue reading Letting Go ~ Out With The Old, In With The New
A while ago I wrote a blog post titled "Hair Loss..It Does Matter Even If It Doesn't". I was starting out on my hair loss journey when I shared this chapter of my story. Back then, I was able to get hair cuts and use hair colour, to cover the early stages of alopecia. Fast … Continue reading Wigs, Hats, Scarves, Or Au Naturale?
You know how it feels to be watching a really sad movie, or reading an emotionally charged book, and you just need a break from it.....well, at the moment, I feel the same writing about chronic illness. In particular, I'm sick of my own sickness story. I need to push pause, change the channel, read … Continue reading A Case Of Chronic Illness Overload
I love that friends, family and even neighbours often think of me and ask how I am, or say they hope I am feeling better. It lets me know that I am cared for and not forgotten, even though my disease has pretty much caused me to live the life of a recluse over recent … Continue reading Not All Stories Can Be Champagne And Roses
When you've lived with Chronic Illness for a number of years, at some point, you adjust to a new way of living. You eventually find a new norm. While you might expect a few highs, lows and some disease flares along the way, generally life evolves into a settled and comfortable pattern. Until it suddenly, … Continue reading “Would You Like A Second Opinion?”… Surreal And Scary!
A while ago I took the plunge and made a hairdressers appointment to get a shorter cut. Sounds pretty normal doesn't it but for me it was huge! Over the past 5 years, since my leg broke and following each major surgery, my hair has been breaking off in chunks. Not sure if it's gone … Continue reading Hair Loss….It Does Matter, Even If It Doesn’t!!
Disappointments come to us all. They are part of life. As hard as they are to endure they can make the special moments in life seem even more precious. They also often teach us valuable life lessons. Despite that knowledge, we still need to live through life's disappointments. We need to find ways to survive … Continue reading Dealing With Disease And Disappointment
My Medical Musings 