Every now and again, I wake up to a "Chronic Illness Catastrophe Day." These are days that happen to all of us with chronic illness, and I'm on a quest to work out how best to manage them once and for all!
"It Takes a Village" is such a familiar phrase for most of us, isn't it.What does it really mean though?
“Why me” can become “why not me”. Sickness is a part of life. Accepting it as your new reality, can help change your disabled world into an abled world.
Turning off Netflix and listening to the silence filling the room, can be so relaxing. Suddenly the birds outside can be heard tweeting, rather than Twitter chirping at you with a notification on your phone.
Sometimes life with chronic illness can be overwhelming. It's not always because of your disease either. It's often all the appointments, including doctors, allied health professionals, equipment trials, dealing with government departments, routine tests and procedures, etc. It can become a full-time job. Your body becomes your business, your place of work, and you can … Continue reading A Heartfelt Letter To Whom It May Concern … I Need To Get My Life Back!
Sometimes, all I need is a glimmer of hope in the form of mini miracles.Living with a chronic disease reminds me of some of my previous plane trips. I’d start off full of nervous anticipation, with a little fear of what lay ahead once on board. There were some smooth passages, and then all of … Continue reading Don’t Miss the Mini Miracles and Unexpected Gifts in Your Life.
My beautiful friend has organised a "virtual" Australian book launch by purchasing 20 of my books to re sell at a special price of $35, including postage to anywhere in Australia. But wait...there's more (as they say) I have signed all 20 books and each signed copy also has a special message from me. If … Continue reading Don’t Miss Out on Our Exclusive “Signed, with a Special Message from Sam” Book Sale
A while ago, on my chronic illness support forum, Medical Musings with Friends, I posted a segment called “Any Questions?”I wanted to invite my forum members to ask me anything about my life, my disease, my writing, etc. It was an “open book” kind of segment.The recurring question, or theme to most questions, was: “How … Continue reading Frequently Asked Questions – Time To Get Up Close and Personal
"My inbuilt professional persona began to surface as I looked at the phone next to me on the bed. It was inevitable. I would answer this call with a bright and upbeat greeting, no matter the real picture of searing pain and chronic disease."
Rather than expecting a perfect life filled with halcyon days, I choose to love and cherish the moments of my life where I can engage with some of the activities I enjoy.
My Medical Musings 