A Day In Our Life of Alzhiemers We've had a terrible night, the night before last.Lots of hail, another power outage, etc.Then my husband decided his catheter drain switch wasn't working, so he put a bulldog clip on the end of the tube. I rang the ambulance, and they came out and said it was … Continue reading Our Alzhiemers Rainbow …A Colourful Chaotic Time of Change
The future is a little unknown, but we are just trying to take life one day at a time .
We have an incredibly long and unknown journey ahead of us. We are both so exhausted but thankful for the support from carers, registered nurses and our medical teams.
Hi Everyone, Life has been inundated with challenge after challenge as we navigate the world of Alzhiemers Disease with Peter, and my disease is taking so many twists and turns I’m struggling to get through each day physically, and getting more and more exhausted. As you know I have made the heart breaking decision to … Continue reading My Third Snippet….This Time a Health Update (August 2024)
Feeling overwhelmed? Me too. I think that’s perfectly normal. They may be months away, but they are indelibly printed on our mind. It’s like we have a “post it note” stuck to our forehead, which, of course, only we can see!
(An Excerpt From Chapter Three of My Book, My Medical Musings, A Story of Love, Laughter, Faith and Hope: Living with a Rare Disease) Happiness is letting go of what you think your life is supposed to look like, and celebrating it for everything that it is” –Mandy Hale What an insightful quote! There is so … Continue reading Are You Living A Happy Life or A Life You Think You Should Be Living?
I need time to have fun again, to block out all the "have too's" and spend blocks of time feeling free to focus on unimportant things, trivial things, moments of not worrying about commitments, life stresses etc.
“Why me” can become “why not me”. Sickness is a part of life. Accepting it as your new reality, can help change your disabled world into an abled world.
Sometimes life with chronic illness can be overwhelming. It's not always because of your disease either. It's often all the appointments, including doctors, allied health professionals, equipment trials, dealing with government departments, routine tests and procedures, etc. It can become a full-time job. Your body becomes your business, your place of work, and you can … Continue reading A Heartfelt Letter To Whom It May Concern … I Need To Get My Life Back!
"My inbuilt professional persona began to surface as I looked at the phone next to me on the bed. It was inevitable. I would answer this call with a bright and upbeat greeting, no matter the real picture of searing pain and chronic disease."
My Medical Musings 