Category: autoimmune disease

Where Do I Start? A Diagnosis of Myositis and So Much Is Happening …. But I Will Try An Update!

~ Sam ~ 2 Comments

Hi Everyone, Since I last posted, our lives have been turned upside down. I think the best way to bring you the simplest update is to list the events, and then I'll chat about key issues. Here goes..... Let's start with good news: Peter had his ACAT assessment last week for 7⁷⁷Level 4 Aged Care … Continue reading Where Do I Start? A Diagnosis of Myositis and So Much Is Happening …. But I Will Try An Update!

Sam’s Snippets Number Five – Pyjama Day With Purpose…Plus A Health Update

~ Sam ~ 3 Comments

What is the first thing that comes to mind if I tell you I've been having Pyjama Days? I asked this question to my carers, Registered Nurses and Occupational Therapists. I thought I'd get a range of answers from this group of people. However, they all answered with the same reply..... "A day of rest … Continue reading Sam’s Snippets Number Five – Pyjama Day With Purpose…Plus A Health Update

Finding Ways To Survive “Living in Limbo” with Chronic Illness

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Life isn’t always straightforward. It's a bit of a cliche, I know, but it’s so true!Eight years ago, I sat in pain with two broken legs, recovering from two major surgeries eight weeks apart. I was facing a future filled with so many “unknown” elements.At that moment, “Life isn’t straight forward”, is exactly what came … Continue reading Finding Ways To Survive “Living in Limbo” with Chronic Illness

Learning to Reclaim “Me”!

~ Sam ~ 5 Comments

I need time to have fun again, to block out all the "have too's" and spend blocks of time feeling free to focus on unimportant things, trivial things, moments of not worrying about commitments, life stresses etc.

Frequently Asked Questions – Time To Get Up Close and Personal

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A while ago, on my chronic illness support forum, Medical Musings with Friends, I posted a segment called “Any Questions?”I wanted to invite my forum members to ask me anything about my life, my disease, my writing, etc. It was an “open book” kind of segment.The recurring question, or theme to most questions, was: “How … Continue reading Frequently Asked Questions – Time To Get Up Close and Personal

What Does A “Chronically Ill Contented Life” Really Look Like?

~ Sam ~ 8 Comments

Rather than expecting a perfect life filled with halcyon days, I choose to love and cherish the moments of my life where I can engage with some of the activities I enjoy.

There is Something Good in Every Day…Even With Chronic Disease

~ Sam ~ 2 Comments

There is something good in every day. Is there? Is that even a possible concept for those of us who have chronic diseases? The initial response from the chronic illness community is likely to be a resounding "No". Pain, procedures, lack of sleep, lack of understanding, countless medical appointments and tests, chronic fatigue, lack of … Continue reading There is Something Good in Every Day…Even With Chronic Disease