Rather than expecting a perfect life filled with halcyon days, I choose to love and cherish the moments of my life where I can engage with some of the activities I enjoy.
What Does A “Chronically Ill Contented Life” Really Look Like?
Category: autoimmune disease
There is Something Good in Every Day…Even With Chronic Disease
There is something good in every day. Is there? Is that even a possible concept for those of us who have chronic diseases? The initial response from the chronic illness community is likely to be a resounding "No". Pain, procedures, lack of sleep, lack of understanding, countless medical appointments and tests, chronic fatigue, lack of … Continue reading There is Something Good in Every Day…Even With Chronic Disease
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As I Lay Me Down To Sleep…. Who Am I Kidding!
Sometimes laughter is the best medicine, especially when chronic illness turns the simple act of going to bed, into a circus act.I’m no poet, but as my husband and I recovered from last night’s antics over our morning coffee, our conversation ignited a tiny bit of poetic creativity:As I lay me down to sleepMy naughty … Continue reading As I Lay Me Down To Sleep…. Who Am I Kidding!
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Musings About My Future, While Waiting For The Morning Fog To Lift
I’m not talking about the weather, it is the most glorious day outside. I'm sitting in my favourite chair doing what I love most....writing. I really should make the extra effort to get out of my armchair, grab my crutches, grab my phone, grab my coffee and go outside……hmmm, can’t quite achieve that! Not with … Continue reading Musings About My Future, While Waiting For The Morning Fog To Lift
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We All Need To Be Understood…Everyone Has A Story
How many times have you jumped to a wrong conclusion about something? How many times have you inadvertently assessed a situation from the entirely wrong angle? How many times have you completely misjudged someone? Without even realising it, we all easily do this on a regular basis. Tiredness, busyness, listening to others views and opinions, … Continue reading We All Need To Be Understood…Everyone Has A Story
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Acts of Kindness
Living with a Chronic Disease, can at times, feel isolating and an ongoing test of endurance. You never know what great mountain awaits you when you first open your eyes every morning. That's providing you were able to sleep in the first place of course, as pain and discomfort so often try to envelope you … Continue reading Acts of Kindness
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Testing Times….medical tests that is!
What a day! I've just seen my GP, had blood taken & booked in a Bone Scan for Friday & a Breast Scan for next Friday...I must say I feel exhausted thinking about all the tests. I saw my Endocrinologist yesterday who is monitoring my Bone Disease and unfortunately my bone turnover has plummeted again … Continue reading Testing Times….medical tests that is!
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A new fantastic Physiotherapist ~ Outcome = Work in Progress!
Today was my first session with my new Physiotherapist. What an amazing find she is. It turns out she has a special interest in auto immune diseases. She knows all my Specialists and completely understands my overall health issues. I was just so pleased. Not only that but she took the time to work today with my … Continue reading A new fantastic Physiotherapist ~ Outcome = Work in Progress!
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A New Venture!!
I'm very excited about the opportunity to join the Arthritis Queensland team as Volunteer Administrator of their online support forum for women with Inflammatory Arthritis. Arthritis Queensland have provided support to hundreds of women with Rheumatoid Arthritis, Psoriatic Arthritis or Ankylosing Spondylitis through their online forum called "Swell Gals" I've been a member since 2010 … Continue reading A New Venture!!
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Lumps, bumps, sagging eye lids and the list goes on
Last week I saw my Dermatologist as I have a lump growing on my right lower cheek which I was hoping would go away. Best case scenario was that it was a boil or a pimple that forgot I was nearly 50 and that would be that. Not to be, it is under a freckle that … Continue reading Lumps, bumps, sagging eye lids and the list goes on
My Medical Musings 