A Life Of Love, Laughter, Faith And Hope, As I Learn To Live Again With A Rare Disease
I’m not talking about the weather, it is the most glorious day outside. I'm sitting in my favourite chair doing what I love most....writing. I really should make the extra effort to get out of my armchair, grab my crutches, grab my phone, grab my coffee and go outside……hmmm, can’t quite achieve that! Not with … Continue reading Musings About My Future, While Waiting For The Morning Fog To Lift
How many times have you jumped to a wrong conclusion about something? How many times have you inadvertently assessed a situation from the entirely wrong angle? How many times have you completely misjudged someone? Without even realising it, we all easily do this on a regular basis. Tiredness, busyness, listening to others views and opinions, … Continue reading We All Need To Be Understood…Everyone Has A Story
Living with a Chronic Disease, can at times, feel isolating and an ongoing test of endurance. You never know what great mountain awaits you when you first open your eyes every morning. That's providing you were able to sleep in the first place of course, as pain and discomfort so often try to envelope you … Continue reading Acts of Kindness
What a day! I've just seen my GP, had blood taken & booked in a Bone Scan for Friday & a Breast Scan for next Friday...I must say I feel exhausted thinking about all the tests. I saw my Endocrinologist yesterday who is monitoring my Bone Disease and unfortunately my bone turnover has plummeted again … Continue reading Testing Times….medical tests that is!
Today was my first session with my new Physiotherapist. What an amazing find she is. It turns out she has a special interest in auto immune diseases. She knows all my Specialists and completely understands my overall health issues. I was just so pleased. Not only that but she took the time to work today with my … Continue reading A new fantastic Physiotherapist ~ Outcome = Work in Progress!
I'm very excited about the opportunity to join the Arthritis Queensland team as Volunteer Administrator of their online support forum for women with Inflammatory Arthritis. Arthritis Queensland have provided support to hundreds of women with Rheumatoid Arthritis, Psoriatic Arthritis or Ankylosing Spondylitis through their online forum called "Swell Gals" I've been a member since 2010 … Continue reading A New Venture!!
Last week I saw my Dermatologist as I have a lump growing on my right lower cheek which I was hoping would go away. Best case scenario was that it was a boil or a pimple that forgot I was nearly 50 and that would be that. Not to be, it is under a freckle that … Continue reading Lumps, bumps, sagging eye lids and the list goes on
Ok, not quite as dramatic as my tongue needing to extracted but the Dental CT Scan the Oral and Maxillofacial Surgeon sent me for, has revealed a bone fragment is jutting out from my jaw bone into my gum. So that explains the inflammation in that area and if I wasn't on so many pain … Continue reading Dental CT Scan Results ~ I haven’t escaped with a clear report card!!
