Caring For The Carer

Many people with Chronic Illness require full time Carers. Often that role is filled by loved ones. Our husbands, wives, life partners, siblings, parents, children, even grandparents.Watching a loved one suffer is just so confronting. No one wants to see someone writhing in pain, or watch the person they're caring for lose their ability to … Continue reading Caring For The Carer

As I Lay Me Down To Sleep…. Who Am I Kidding!

Sometimes laughter is the best medicine, especially when chronic illness turns the simple act of going to bed, into a circus act.I’m no poet, but as my husband and I recovered from last night’s antics over our morning coffee, our conversation ignited a tiny bit of poetic creativity:As I lay me down to sleepMy naughty … Continue reading As I Lay Me Down To Sleep…. Who Am I Kidding!

A Sticky Story!!

Many of us who have had multiple abdominal surgeries can find we later have issues with adhesions. I was reminded of this the other day when I was talking to someone about my story. I was further reminded yesterday of my abdominal adhesions, when I spent 8 hours in crippling pain, due to a bowel/stoma … Continue reading A Sticky Story!!

Going Home

I'm being discharged this morning with more questions than answers. That is not the fault of my medical team though, just the fault of my body. We know I have developed colitis, inflammation of the bowel, but we don't know if it is autoimmune ulcerative colitis or if it is being caused by a virus. … Continue reading Going Home