For two years, before medically retiring, I was still holding out hope of being able to return to work eventually, despite being on Income Protection and battling one health hurdle after the other. The realist in me knew I was facing a very different life, as I began to lose my ability to walk any … Continue reading The Best Disability Advice I Ever Received Was Not What I Expected!
Is It Sunday, Monday, or Tuesday….And Does It Really Matter What Day It Is?
Ultimately, it doesn’t matter what day it is.It matters that I make the most of every single day and make the moments within the day count. It matters that I don’t waste time being discontent about my circumstances.
Just Treading Water
As a patient advocate, I am often called, inspiring, motivating, and full of strength despite my adversities. The truth is that most days, I am just treading water.
Reflecting on Resilience, Courage, and My Chronic Illness Journey.
What I didn’t realise was how much resilience and courage I would need to publish my memoirs and even just to blog about my chronic illness journey. I knew I wanted to share my story to help others, but to do so really does make you vulnerable.
My Book Is Turning One! My Year in Review as a Published Author!
I always knew releasing a book would be exciting but, in my naivety, I never expected it to be so exhausting and so emotional! It's been such a huge 12 months for me since having my book published. It actually feels like a lifetime ago in some regards, as my health complications became intertwined with … Continue reading My Book Is Turning One! My Year in Review as a Published Author!
You Have a Chronic Illness, but It’s Ok to Look and Sound Good When You Can. It’s Ok to Still be You!
I don’t want to be a prisoner to my disease. I want to scale whatever heights I can safely push, and ultimately I’m the only one who can decide my limits.
A Personal Letter from Sam….My Health and Life Update and an Apology.
Hi Everyone, I recently wrote a letter to the members of my support forum, Medical Musings with Friends . I wanted to apologise for being so quiet with replying to their comments on the forum, and not commenting on posts in general lately. I've managed to schedule daily segments to encourage community and discussion, but … Continue reading A Personal Letter from Sam….My Health and Life Update and an Apology.
There is Something Good in Every Day…Even With Chronic Disease
There is something good in every day. Is there? Is that even a possible concept for those of us who have chronic diseases? The initial response from the chronic illness community is likely to be a resounding "No". Pain, procedures, lack of sleep, lack of understanding, countless medical appointments and tests, chronic fatigue, lack of … Continue reading There is Something Good in Every Day…Even With Chronic Disease
My Chronic Illness Clown For The Day!
"I'm going to be your clown for the day" These are the words my husband greeted me with, as I munched on my cornflakes. I knew instantly why, but I imagine his statement will require some explaining. I had a crazy idea I could take on a bigger workload. As my regular readers will know, … Continue reading My Chronic Illness Clown For The Day!
Question Time With Friends
A while ago on my forum Medical Musings with Friends , I posted a segment called “Any Questions?” I wanted to invite my forum members to ask me anything about my life, my disease, my writing etc. It was an "open book" kind of segment. The recurring question, or theme to the questions, was; “how do you … Continue reading Question Time With Friends