A Life Of Love, Laughter, Faith And Hope, As I Learn To Live Again With A Rare Disease
A while ago on my forum Medical Musings with Friends , I posted a segment called “Any Questions?” I wanted to invite my forum members to ask me anything about my life, my disease, my writing etc. It was an "open book" kind of segment. The recurring question, or theme to the questions, was; “how do you … Continue reading Question Time With Friends
Without resilience there is no way I would be coping today, both with the horrors of my health and the wonders of my new writing career.
It’ll do”“It’s good enough”“You’re doing so well”” Good job”“Time to rest”“Not going to happen today”“Maybe tomorrow”In my previous life, by which I mean life before chronic illness, I always had a whole range of “self talk” language helping me achieve my goals.They were all positive, affirmative statements like;“you can do it, you’ve got this, keep … Continue reading Self Talk….”It’ll Do” And Other Chronic Illness Chat Lines
Wow... Medical Musings With Friends, my online support forum, is turning 5 years old on the 14th January. I also started this blog, My Medical Musings, 7 years ago in January 2015. It's definitely a month of milestones! Both of these are my main daily focus since medically retiring and I am so grateful to have … Continue reading A Month of Musing Milestones!!
As 2021 is coming to a close, I like to take time to reflect on my writing year. I’ve so enjoyed blogging plus writing articles for The Mighty. I launched my Podcast in 2020, Medical Musings With Sam, which has proved to be a wonderful way to bring my blog posts to life. Thank You! So this … Continue reading Reviewing My Writing Year….Thank You For Reading, Sharing and Listening!
When we think of Chronic Disease, we wouldn't usually have happy thoughts or find ourselves looking forward to a bright future. Fear, horror, uncertainty and grief are generally the normal response. However, the reality of living a chronic illness life can be quite liberating, as I've surprisingly found over the past 7 years. One of … Continue reading You’ve Created A “Chronic Illness Career”….Don’t Forget To Have A Weekend!
How do you continue to live life to the full when your health limits everything you do? How do you cope with waiting for a reprieve in symptoms when, the reality is, no reprieve is coming? I’m not going to say there are easy answers to these questions because there definitely are not. It’s hard. … Continue reading A Full And Fulfilled Chronic Illness Life
When I was working my husband always used to stir me about having my mobile phone strapped to my ear, or in my hand, almost 24/7. He wasn't exaggerating either! The other night while I was lying in bed frantically tapping away on my phone screen, I paused for a moment and looked up at … Continue reading I Love My Phone!! It’s A Chronic Illness Lifeline
For some time I've really admired people who Vlog. It's such a great way to interact with followers and convey, in an easy relaxed way, a message which could get lost in the written word of blogging. It's also terrifying! I've always been used to Public Speaking throughout my working life. Somehow that was different. … Continue reading Dipping My Toe In The World of Vlogging
Have you looked at your Calendar at the start of a month and thought to yourself, " What on earth was I thinking. I can't possibly do all that!" I'm sure I'm not alone in this exclamation. As I scrolled through my calendar on my phone for the month ahead, I felt physically sick. It … Continue reading Calendar Chaos
My Medical Musings 