Hi Everyone, I recently wrote a letter to the members of my support forum, Medical Musings with Friends . I wanted to apologise for being so quiet with replying to their comments on the forum, and not commenting on posts in general lately. I've managed to schedule daily segments to encourage community and discussion, but … Continue reading A Personal Letter from Sam….My Health and Life Update and an Apology.
There is something good in every day. Is there? Is that even a possible concept for those of us who have chronic diseases? The initial response from the chronic illness community is likely to be a resounding "No". Pain, procedures, lack of sleep, lack of understanding, countless medical appointments and tests, chronic fatigue, lack of … Continue reading There is Something Good in Every Day…Even With Chronic Disease
"I'm going to be your clown for the day" These are the words my husband greeted me with, as I munched on my cornflakes. I knew instantly why, but I imagine his statement will require some explaining. I had a crazy idea I could take on a bigger workload. As my regular readers will know, … Continue reading My Chronic Illness Clown For The Day!
A while ago on my forum Medical Musings with Friends , I posted a segment called “Any Questions?” I wanted to invite my forum members to ask me anything about my life, my disease, my writing etc. It was an "open book" kind of segment. The recurring question, or theme to the questions, was; “how do you … Continue reading Question Time With Friends
Without resilience there is no way I would be coping today, both with the horrors of my health and the wonders of my new writing career.
It’ll do”“It’s good enough”“You’re doing so well”” Good job”“Time to rest”“Not going to happen today”“Maybe tomorrow”In my previous life, by which I mean life before chronic illness, I always had a whole range of “self talk” language helping me achieve my goals.They were all positive, affirmative statements like;“you can do it, you’ve got this, keep … Continue reading Self Talk….”It’ll Do” And Other Chronic Illness Chat Lines
Wow... Medical Musings With Friends, my online support forum, is turning 5 years old on the 14th January. I also started this blog, My Medical Musings, 7 years ago in January 2015. It's definitely a month of milestones! Both of these are my main daily focus since medically retiring and I am so grateful to have … Continue reading A Month of Musing Milestones!!
As 2021 is coming to a close, I like to take time to reflect on my writing year. I’ve so enjoyed blogging plus writing articles for The Mighty. I launched my Podcast in 2020, Medical Musings With Sam, which has proved to be a wonderful way to bring my blog posts to life. Thank You! So this … Continue reading Reviewing My Writing Year….Thank You For Reading, Sharing and Listening!
When we think of Chronic Disease, we wouldn't usually have happy thoughts or find ourselves looking forward to a bright future. Fear, horror, uncertainty and grief are generally the normal response. However, the reality of living a chronic illness life can be quite liberating, as I've surprisingly found over the past 7 years. One of … Continue reading You’ve Created A “Chronic Illness Career”….Don’t Forget To Have A Weekend!
How do you continue to live life to the full when your health limits everything you do? How do you cope with waiting for a reprieve in symptoms when, the reality is, no reprieve is coming? I’m not going to say there are easy answers to these questions because there definitely are not. It’s hard. … Continue reading A Full And Fulfilled Chronic Illness Life