(Warning: Some images in this blog post may be confronting) My approach to any life changing event always starts with making time to stop and think. It’s crucial to be deliberate and focused when dealing with change.
Category: Carer
What Does A “Chronically Ill Contented Life” Really Look Like?
Rather than expecting a perfect life filled with halcyon days, I choose to love and cherish the moments of my life where I can engage with some of the activities I enjoy.
Snap, Crackle, Pop…Caring Love Never Stops!
Snap, crackle and pop…and just like that I can't move my back. I've been doing reasonably well so it's disappointing when my broken body decides to break a little more, but this is life with a crazy bone disease. I can't thank my beautiful husband enough for his love and support. When you can't do … Continue reading Snap, Crackle, Pop…Caring Love Never Stops!
Carparks, A Recliner And A Telephone
You may read this blog post title with a sense of bewilderment. You may be wondering where on earth am I going with this and what on earth has any of it got to do with chronic disease and disability! Well, in my world these three things, Carparks, a Recliner and a Telephone, have all … Continue reading Carparks, A Recliner And A Telephone
I Can’t Give Up…..Please, Let Me Try!
Chronic Illness takes many things from us. Some aspects of our diseases we can’t control but there are some we need to find a way to overcome. Over the past 6 months I have felt like my disease has been winning. I’ve felt like a prisoner in a body determined to suffocate me. I’ve even … Continue reading I Can’t Give Up…..Please, Let Me Try!
Our 26th Wedding Anniversary
Love is a beautiful thing and never more so when it has ripened and flourished. On the 15th December, my husband and I will have been married 26 years, and on Christmas Day it's 27 years since our engagement. The Facebook post below sums up my love for Peter. Like all couples we have our, … Continue reading Our 26th Wedding Anniversary
My Burst Bubble Of Contentment
I thought I was pacing at a level which couldn't possibly get any slower. My last blog post gave you a Peek Through My Window Of Pain. It details how slowly I need to move, how limited my physical functionality is. Despite my limitations, I have been comfortable with my daily routine, with my ability … Continue reading My Burst Bubble Of Contentment
Dipping My Toe In The World of Vlogging
For some time I've really admired people who Vlog. It's such a great way to interact with followers and convey, in an easy relaxed way, a message which could get lost in the written word of blogging. It's also terrifying! I've always been used to Public Speaking throughout my working life. Somehow that was different. … Continue reading Dipping My Toe In The World of Vlogging
An Open Letter from a Husband Concerning His Chronically Ill Wife
A forum member on my FB group, Medical Musings with Friends, posted an "open letter" that her husband recently wrote. It is so moving for anyone who is the primary caregiver for their loved one. I thank Him for giving me permission to publish it. To Whom It May Concern My wife was recently placed on … Continue reading An Open Letter from a Husband Concerning His Chronically Ill Wife
Thank you Sweetheart
Behind every great man is a great woman, or so the saying goes. Let's flip that on it's head a little. Behind this chronically ill wife is an amazing husband. A husband who has become a full-time carer. A husband who has gone beyond the call of duty. A husband who has become my legs, … Continue reading Thank you Sweetheart