Living A “Simply Special” Life, Despite Chronic Illness, Despite COVID-19

Living with chronic and disabling disease requires a complete change of lifestyle, a complete change of thinking. Gone are the days of waking up in the morning and jumping out of bed to have a quick breakfast, get showered and dressed, head to work or some fun planned day full of anticipated activities. Losses are … Continue reading Living A “Simply Special” Life, Despite Chronic Illness, Despite COVID-19

Sending The “What Ifs” Of Life Packing

What if? What if my pain is worse tomorrow? What if I can’t sleep? What if I have a reaction to my new medication? What if my condition worsens? What if I contract COVID-19? What if my friends or family won’t understand why I need to continue to self isolate when pandemic restrictions are lifted? … Continue reading Sending The “What Ifs” Of Life Packing

A World Changing Course – Entering The Unknown

The World is dealing with the unknown. We are all dealing with the unknown. Coronavirus, or COVID-19, is taking us on a journey we have never experienced before, certainly not in our lifetimes. Ultimately we are having to deal with change on a huge scale. Change causes fear and fear causes responses in ourselves and … Continue reading A World Changing Course – Entering The Unknown

“I Should, I Better, I Have To” …..No, You Really Don’t!!

How often do you tell yourself " I should be doing such and such" or " I'd better do this or that" ? We all do it. It's like we are programmed from birth to constantly have a catalogue of "should do, must do, better do", all filed in the front of our minds for … Continue reading “I Should, I Better, I Have To” …..No, You Really Don’t!!

A Case Of Chronic Illness Overload

You know how it feels to be watching a really sad movie, or reading an emotionally charged book, and you just need a break from it.....well, at the moment, I feel the same writing about chronic illness. In particular, I'm sick of my own sickness story. I need to push pause, change the channel, read … Continue reading A Case Of Chronic Illness Overload

Happy 6th Stomaversary to Rudolph and Me!

I can’t believe today, on the 11th November, my beloved stoma, affectionately called Rudolph, is turning 6! For those of you without a stoma it may seem a strange thing to celebrate. While it was life changing, it was also life saving and I will be forever grateful for the day of my stoma surgery. … Continue reading Happy 6th Stomaversary to Rudolph and Me!