Living with chronic and disabling disease requires a complete change of lifestyle, a complete change of thinking. Gone are the days of waking up in the morning and jumping out of bed to have a quick breakfast, get showered and dressed, head to work or some fun planned day full of anticipated activities. Losses are … Continue reading Living A “Simply Special” Life, Despite Chronic Illness, Despite COVID-19
What if? What if my pain is worse tomorrow? What if I can’t sleep? What if I have a reaction to my new medication? What if my condition worsens? What if I contract COVID-19? What if my friends or family won’t understand why I need to continue to self isolate when pandemic restrictions are lifted? … Continue reading Sending The “What Ifs” Of Life Packing
The World is dealing with the unknown. We are all dealing with the unknown. Coronavirus, or COVID-19, is taking us on a journey we have never experienced before, certainly not in our lifetimes. Ultimately we are having to deal with change on a huge scale. Change causes fear and fear causes responses in ourselves and … Continue reading A World Changing Course – Entering The Unknown
A while ago I wrote a blog post titled "Hair Loss..It Does Matter Even If It Doesn't". I was starting out on my hair loss journey when I shared this chapter of my story. Back then, I was able to get hair cuts and use hair colour, to cover the early stages of alopecia. Fast … Continue reading Wigs, Hats, Scarves, Or Au Naturale?
You would be forgiven for thinking this is a Valentine's Day post given the title I've chosen. Please rest assured it's not. It's a continuation of my musings about acceptance being the gateway to a new life. Acceptance is not a sad resignation, it's the pathway to peace, happiness and freedom from prolonged grief. For me … Continue reading Old Loves, New Loves
“Life is too short, take nothing for granted” These are catch phrases we have probably allowed to roll off our tongues at one time or another. Both have so much meaning and I hazard a guess, a slightly different meaning for all of us. On my Facebook Support Group, we have a weekly segment called … Continue reading Never Take Anything For Granted
How often do you tell yourself " I should be doing such and such" or " I'd better do this or that" ? We all do it. It's like we are programmed from birth to constantly have a catalogue of "should do, must do, better do", all filed in the front of our minds for … Continue reading “I Should, I Better, I Have To” …..No, You Really Don’t!!
You know how it feels to be watching a really sad movie, or reading an emotionally charged book, and you just need a break from it.....well, at the moment, I feel the same writing about chronic illness. In particular, I'm sick of my own sickness story. I need to push pause, change the channel, read … Continue reading A Case Of Chronic Illness Overload
I can’t change my health situation but I can always change my mindset and I have deliberately choosen to embrace my new life.
I can’t believe today, on the 11th November, my beloved stoma, affectionately called Rudolph, is turning 6! For those of you without a stoma it may seem a strange thing to celebrate. While it was life changing, it was also life saving and I will be forever grateful for the day of my stoma surgery. … Continue reading Happy 6th Stomaversary to Rudolph and Me!