A Life Of Love, Laughter, Faith And Hope, As I Learn To Live Again With A Rare Disease
On the 14th October 2021, after 5 weeks bed bound in hospital, due to my “acute” spinal collapse and bone disease progression, I was finally allowed home. I was sent home via ambulance as my condition hadn't improved. I still couldn't sit or stand for more than 2 minutes at a time. Walking with a … Continue reading Overwhelmed and Under Prepared
It was 3am Tuesday morning, 7th September, 2021. I desperately needed to go to the bathroom, so I rolled out of bed, the way physiotherapists had always shown me to do. I reached for my awaiting crutch and made it to the ensuite, not without pain, with my usual pain. I got back into bed … Continue reading An Acute Life Changing Chapter
Life isn't always fun. It will always have highs and lows. Times when we are ecstatic. Times when we are happy. Times when we are content. Times when we are melancholy. Times when we are bored. Times when we just have to deal with drudgery. I'm sitting in the "dealing with drudgery" category at the … Continue reading Dealing With Daily Drudgery
One of the things I have always loved is Interior Design. After working crazy hours, when I was able to work, I would like nothing better than to spend the weekend at home. It's always been my happy place. As a young girl I loved creating a new look in my bedroom regularly, using different … Continue reading Interior “Disability” Design
Snap, pop and crackle…and just like that I can't move my back. I've been doing reasonably well so it's disappointing when my broken body decides to break a little more, but this is life with a crazy bone disease. I can't thank my beautiful husband enough for his love and support. When you can't do … Continue reading Love Conquers All….Even Acute and Chronic Pain
Many of us who have had multiple abdominal surgeries can find we later have issues with adhesions. I was reminded of this the other day when I was talking to someone about my story. I was further reminded yesterday of my abdominal adhesions, when I spent 8 hours in crippling pain, due to a bowel/stoma … Continue reading A Sticky Story!!
I love life's little challenges. I love problem solving and turning obstacles into opportunities. I love putting a positive spin on what would otherwise be a very negative situation. I've always done this, both in my personal and my working life. So, chronic disease really wasn't going to change my approach to finding a way … Continue reading The Non Negotiable Chronic Illness Rule
"Hello, you're back again, so nice to see you, how are you?" You'd be forgiven for thinking this warm greeting was being given by a friend, a colleague, or a local shop owner who I'd known for years. This was the greeting I received by the Radiologist at my hospital, when I arrived for my … Continue reading MRI Marathon
Waiting isn’t easy, no matter what we are waiting for.2020 taught us this and 2021 has continued with the same waiting theme.As the world continues to grapple with a global health pandemic, we are all still waiting.Waiting for it to be over.Waiting for a vaccine against Coronavirus to become widely available and rolled out as … Continue reading Standing By You While You Wait
You’re probably wondering what on earth the title to this blog post means. How can you be “Blissfully Broken”? No I haven’t gone mad…..ok, maybe just a little! I’m musing about my life as it stands today. When chronic illness is complex it’s easy to feel overwhelmed. We can be diagnosed with so many adjunct … Continue reading Blissfully Broken
