A New Year Promise…Hope In The Midst of Delight and Despair

“For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future.”  Jeremiah 29 v 11 ( New International Version) I love this verse from the Bible. I can’t think of a better verse to read and muse on as we … Continue reading A New Year Promise…Hope In The Midst of Delight and Despair

A Chronic Christmas Celebration….(A Few Tips to Create Your Own Unique Festive Holiday Traditions)

Looks like my husband and I made it on Santa's "good list". Santa even did an early drop off with personalised Santa sacks on the 23rd December!We are however not allowed to peek inside until Christmas morning. It even says so on Santa's sack! 😇😏🥰🎅 (yes, I am connecting with my inner child for a … Continue reading A Chronic Christmas Celebration….(A Few Tips to Create Your Own Unique Festive Holiday Traditions)

What To Do When You Don’t Know What To Do!

(Including a Health Update) Sometimes the path ahead in life can seem a little unclear. Sometimes we are faced with a range of life choices, almost too many, which often complicate matters and require a great deal of thought….too much thought!! Sometimes we have limited choices, none of which are particularly helpful, so instead of … Continue reading What To Do When You Don’t Know What To Do!

Have Yourself A Merry Little “Chronic Illness” Christmas!

As Christmas Day fast approaches I imagine most of us, in the chronic illness community, are musing about what we want to realistically achieve over the holiday period. For those of us with chronic disease it can be an incredibly overwhelming time. Just trying to be happy for others, when your body is screaming at … Continue reading Have Yourself A Merry Little “Chronic Illness” Christmas!

Part Two of My Interview as a Guest on, “I Am Not My Pain Podcast”, with Host Melissa Adams

I am so excited to share part two of my interview with Melissa on her podcast, "I Am Not My Pain Podcast". In case you missed part one, which includes my introduction to Melissa and how we met, here is the link to my blog post containing everything you need to know, including the Podcast … Continue reading Part Two of My Interview as a Guest on, “I Am Not My Pain Podcast”, with Host Melissa Adams

Don’t Miss the Mini Gifts and Miracles in Your Life

Sometimes, all I need is a teaspoon of hope in the form of mini miracles.Living with a chronic disease reminds me of some of my previous plane trips. I’d start off full of nervous anticipation, with a little fear of what lay ahead once on board. There were some smooth passages and then all of … Continue reading Don’t Miss the Mini Gifts and Miracles in Your Life

A Year Later…One Step, Two Steps…Will There Be A Third?

Some dates are forever etched in our memories. I have a few but there are two I will never forget. October 6th 2014 is the first. It was the day my femur broke.   It was a life changing day. A day that would start me on a journey with a rare bone disease, so rare that … Continue reading A Year Later…One Step, Two Steps…Will There Be A Third?

There is Something Good in Every Day…Even With Chronic Disease

There is something good in every day. Is there? Is that even a possible concept for those of us who have chronic diseases? The initial response from the chronic illness community is likely to be a resounding "No". Pain, procedures, lack of sleep, lack of understanding, countless medical appointments and tests, chronic fatigue, lack of … Continue reading There is Something Good in Every Day…Even With Chronic Disease