I thought I was pacing at a level which couldn't possibly get any slower. My last blog post gave you a Peek Through My Window Of Pain. It details how slowly I need to move, how limited my physical functionality is. Despite my limitations, I have been comfortable with my daily routine, with my ability … Continue reading My Burst Bubble Of Contentment
Category: Chronic Disease
COVID, Chaos and Calm
I love turning over the calendar at the beginning of a new month. I have a pretty wall calendar in my study, so I look forward to revealing a new picture on the morning of the 1st day. It’s a symbolic act in some regards, of saying goodbye to the old month, the good and … Continue reading COVID, Chaos and Calm
Wig On It’s Way!
I never imagined feeling so excited about receiving an email with the subject header: "Your Wig Is On It's Way" I am, surprisingly, incredibly excited. It's time to embrace what has been one of the most challenging consequences of my chronic illness. Last year I began to face significant hairloss. To say it was confronting … Continue reading Wig On It’s Way!
WEGO Health Awards Announcement…Thank You So Much
Hi Everyone,Firstly I want to thank those whonominated me for eight WEGO Health Awards for 2021. I am so honoured and grateful as this is an amazing opportunity to raise awareness of my Facebook Support Forum, Medical Musings with Friends , and reach out to more people globally in need of genuine care and support. So, now … Continue reading WEGO Health Awards Announcement…Thank You So Much
Sleepless Night Strategies
I can cope with most things about my disability. I'm not saying it's easy, it's far from easy. I have though, over the years, developed a toolkit of chronic disease management strategies which I've written about previously. These help me greatly on a daily basis: My Chronic Disease Management PlanBody Behaving Badly) My pain is … Continue reading Sleepless Night Strategies
The Non Negotiable Chronic Illness Rule
I love life's little challenges. I love problem solving and turning obstacles into opportunities. I love putting a positive spin on what would otherwise be a very negative situation. I've always done this, both in my personal and my working life. So, chronic disease really wasn't going to change my approach to finding a way … Continue reading The Non Negotiable Chronic Illness Rule
MRI Marathon
"Hello, you're back again, so nice to see you, how are you?" You'd be forgiven for thinking this warm greeting was being given by a friend, a colleague, or a local shop owner who I'd known for years. This was the greeting I received by the Radiologist at my hospital, when I arrived for my … Continue reading MRI Marathon
My Very Own “Escape To The Country”
In 2018, as the New Year approached, I decided to dare to dream and wrote a blog post, Let's Go Fly A Kite. The idea was to list a few things I would love to do but felt were way out of reach or were just pure imagination. I also had a small realistic list. … Continue reading My Very Own “Escape To The Country”
Life Is Too Short Not To Be Grateful !
“Life is too short, take nothing for granted” Catch phrases roll off our tongues at one time or another. I hazard a guess, they have a slightly different meaning for all of us. On my Facebook Support Group, we often have a segment called “Thankful Thursday". Members share a few things they are grateful for … Continue reading Life Is Too Short Not To Be Grateful !
Blissfully Broken
You’re probably wondering what on earth the title to this blog post means. How can you be “Blissfully Broken”? No I haven’t gone mad…..ok, maybe just a little! I’m musing about my life as it stands today. When chronic illness is complex it’s easy to feel overwhelmed. We can be diagnosed with so many adjunct … Continue reading Blissfully Broken











