You may read this blog post title with a sense of bewilderment. You may be wondering where on earth am I going with this and what on earth has any of it got to do with chronic disease and disability! Well, in my world these three things, Carparks, a Recliner and a Telephone, have all … Continue reading Carparks, A Recliner And A Telephone
Category: Complex illness
My Latest Podcast…A Dream Realised…I’m An Author!
My Latest Podcast episode is finally recorded... It's been a while between episodes but I've finally found time to record one!!As my book "My Medical Musings" is set to officially launch on May 20th, I share with you my excitement at achieving a lifelong dream of becoming an Author....and more importantly I encourage my listeners … Continue reading My Latest Podcast…A Dream Realised…I’m An Author!
Caring For The Carer
Many people with Chronic Illness require full time Carers. Often that role is filled by loved ones. Our husbands, wives, life partners, siblings, parents, children, even grandparents.Watching a loved one suffer is just so confronting. No one wants to see someone writhing in pain, or watch the person they're caring for lose their ability to … Continue reading Caring For The Carer
A Sweet Happy Easter!
There is always a lot I can write about in regards to my health but today I want to say “Happy Easter”.This is such a wonderful time of the year, full of the hope of new life, as we remember what Jesus did for us on the cross, dying so we might be saved and … Continue reading A Sweet Happy Easter!
Sailing Through Storms
I’m not afraid of storms, for I’m learning how to sail my ship.Louisa May Alcott (Author of “Little Women”) I always think we have a choice when faced with “storms of life”.We can bunker down and wait for the storm to pass, or we can continue to live, albeit with impediments, and find a way … Continue reading Sailing Through Storms
#Break The Bias
March 8th is International Women's Day "Imagine a gender equal world. A world free of bias, stereotypes and discrimination. A world that's diverse, equitable, and inclusive. A world where difference is valued and celebrated. Together we can forge women's equality. Collectively we can all #BreakTheBias.Celebrate women's achievement. Raise awareness against bias. Take action for equality"International … Continue reading #Break The Bias
Just Because It’s Over, Doesn’t Mean It’s Over
What a week! Parts of Australia, in South East Queensland and New South Wales, are experiencing catastrophic flooding. It's due to an extreme, unpredictable weather system we are calling a "rain bomb". One reporter said the rain was of "biblical" proportion and I have to agree. I was lying in bed listening to it's intensity … Continue reading Just Because It’s Over, Doesn’t Mean It’s Over
Why Is It Important Your Rare Disease Has A Name? ….It Gives You Validation!
We all know how important it is to be validated. For those of us with rare diseases, or any undiagnosed chronic illness, being validated often means having a specific name for our diseases. Sometimes though there are diseases, recognised by the medical profession, that simply don't have names. They are often called "idiopathic" as they … Continue reading Why Is It Important Your Rare Disease Has A Name? ….It Gives You Validation!
World Rare Disease Day – February 28th (A Guest Post By Gina Baker)
February 28th is an incredibly important day, especially for those of us working hard to raise awareness about rare diseases. February 28th is the global Rare Disease Day. On my support forum, Medical Musings with Friends, I have many members with rare diseases. Some of these diseases have names, some are so rare they are … Continue reading World Rare Disease Day – February 28th (A Guest Post By Gina Baker)
Stones or Balloons?
Ok, the title of this blog post is probably more confusing than it is enlightening. Let's go for "intriguing" and hopefully together we will unpack it's hidden treasures. I was listening to a sermon on Sunday morning and the preacher made an interesting comment, causing me to listen a little more intently than I had … Continue reading Stones or Balloons?











