Where Do I Start? A Diagnosis of Myositis and So Much Is Happening …. But I Will Try An Update!

Hi Everyone, Since I last posted, our lives have been turned upside down. I think the best way to bring you the simplest update is to list the events, and then I'll chat about key issues. Here goes..... Let's start with good news: Peter had his ACAT assessment last week for 7⁷⁷Level 4 Aged Care … Continue reading Where Do I Start? A Diagnosis of Myositis and So Much Is Happening …. But I Will Try An Update!

My Third Snippet….This Time a Health Update (August 2024)

Hi Everyone, Life has been inundated with challenge after challenge as we navigate the world of Alzhiemers Disease with Peter, and my disease is taking so many twists and turns I’m struggling to get through each day physically, and getting more and more exhausted. As you know I have made the heart breaking decision to … Continue reading My Third Snippet….This Time a Health Update (August 2024)

Finding Ways To Survive “Living in Limbo” with Chronic Illness

Life isn’t always straightforward. It's a bit of a cliche, I know, but it’s so true!Eight years ago, I sat in pain with two broken legs, recovering from two major surgeries eight weeks apart. I was facing a future filled with so many “unknown” elements.At that moment, “Life isn’t straight forward”, is exactly what came … Continue reading Finding Ways To Survive “Living in Limbo” with Chronic Illness

Here We Go Again….More Medical Appointments Ahead!!

Feeling overwhelmed? Me too. I think that’s perfectly normal. They may be months away, but they are indelibly printed on our mind. It’s like we have a “post it note” stuck to our forehead, which, of course, only we can see!

A Bureaucracy  Marathon… Part Two of  Our “Fit to Drive” Medical Certificate Challenge!

I just don't understand why someone in government departments and medical practices can't come up with ways to make administrative requests disability friendly.

How On Earth Did We Become A COVID Couple??

I don't think I'll ever get rid of the vision of my husband slumped half on the floor, with his head slammed into the hard arm of the chair, unconscious and vomiting while unresponsive. I've never been so scared in all my life.