A Life Of Love, Laughter, Faith And Hope, As I Learn To Live Again With A Rare Disease
You may read this blog post title with a sense of bewilderment. You may be wondering where on earth am I going with this and what on earth has any of it got to do with chronic disease and disability! Well, in my world these three things, Carparks, a Recliner and a Telephone, have all … Continue reading Carparks, A Recliner And A Telephone
Everyone wants to present the best version of themselves. We all have an image of how we’d like to look and often the image in our mind, falls short of the reality we see in the mirror.Of course some mirrors give a very distorted view. I have in my home what I call “naughty and … Continue reading Body Image….A Love Hate Relationship
We all know the saying; "When life gives you lemons, use them to make lemonade" It conjures up the notion of strength, determination, optimism, resourcefulness, resilience. All characteristics I've drawn on to deal with the "chronic illness lemons" continuously thrown at me. My lemons often feel like tennis balls in one of those practice machines. … Continue reading Let’s Make Some Lemonade!
As a New Year starts it’s usual to think about the year ahead and set goals, both for your personal and business life, and perhaps plan holidays or other adventures. I did for years. It’s summer in Australia and generally, Christmas to the end of January, is known as the holiday season. Schools are closed … Continue reading The Dreaded New Year Question!!
Some dates are forever etched in our memories. I have a few but one is a day I will never forget October 6th 2014. It was the day my femur broke. It was a life changing day. A day that would start me on a journey with a rare bone disease, so rare that even Specialists … Continue reading One Step, Two Steps…..Will There Be A Third?
On the 14th October 2021, after 5 weeks bed bound in hospital, due to my “acute” spinal collapse and bone disease progression, I was finally allowed home. I was sent home via ambulance as my condition hadn't improved. I still couldn't sit or stand for more than 2 minutes at a time. Walking with a … Continue reading Overwhelmed and Under Prepared
Some challenges in life hit us so hard, as we never saw them coming. Such challenges don't allow us the luxury of preparing ahead of time. They give no warning. They simply arrive! My "acute" spinal collapse , would prove to be one of the hardest challenges I have ever faced, and I've documented a … Continue reading Hard Work In Hospital
How can we practically deal with the "Great Expectations" of an upcoming medical appointment?It happens to all of us with chronic illness. We look at our calendar and see an appointment looming in the future. It offers such promise. We feel a little excited at the prospect of what may come from it.Hope. It offers … Continue reading Great “Medical” Expectations!
"Hello, you're back again, so nice to see you, how are you?" You'd be forgiven for thinking this warm greeting was being given by a friend, a colleague, or a local shop owner who I'd known for years. This was the greeting I received by the Radiologist at my hospital, when I arrived for my … Continue reading MRI Marathon
"Something isn't right. This is a new pain, a new discomfort. I feel like something is stuck in the middle of my abdomen, just below my ribs......plus I look 6 months pregnant!" This is the conversation I had with my husband just over a week ago. He was so concerned by what he was witnessing … Continue reading Another Day, Another Diagnosis
My Medical Musings 