Finding Your Way Through A Chronic Illness Conundrum

You know that feeling when you are completing a jigsaw puzzle only to find that a piece is missing? It’s a devastating moment. Your stomach turns just a little. All that work, all that effort, all that anticipation of a final outcome. A completed picture was the awaiting reward but it’s been snatched away from … Continue reading Finding Your Way Through A Chronic Illness Conundrum

The “Chronic Illness” Law of Diminishing Returns

My title might suggest a study in economics but rest assured it is not where I am heading with this. The Law of Diminishing Returns  Refers to a point at which the level of  benefits gained is less than the amount of money or energy invested. When you live with chronic illness, over time your … Continue reading The “Chronic Illness” Law of Diminishing Returns

Dealing With The “Great Expectations” of A Medical Appointment

It happens to all of us with chronic illness. We look at our calendar and see that appointment date sitting there. Looming in the future. It offers such promise. We feel a little excited at the prospect of what may come from it. Hope. It offers hope. It's still 4 or 6 weeks away but … Continue reading Dealing With The “Great Expectations” of A Medical Appointment

Taking a “Professional Approach” with Your Medical Team

Growing up I was often referred to as “Pollyanna” as I naturally played the glad game, always looking for the positive in a situation. I can’t tell you how grateful I am that I was born with that personality trait given the health issues that have been thrown at me. As I moved into adulthood I … Continue reading Taking a “Professional Approach” with Your Medical Team

Apparently Life Won’t Stand Still, Even If My Legs Won’t Work!

I recently saw one of my favourite Specialists. I always look forward to seeing this particular Specialist. We have become good friends and enjoy chatting about all things French. She is mad about France as am I. With me being born on Bastille Day and also loving French decor, the food and the language, well … Continue reading Apparently Life Won’t Stand Still, Even If My Legs Won’t Work!

Accepting Reality

The term "Rare Disease" suggests unknown territory, complications and no easy answers. That terminology definitely describes my rare bone disease. My Orthopaedic Specialist appointment today didn't fully deliver on my great expectations but on some levels it did. It certainly delivered a sense of direction and further understanding of what it means to live with … Continue reading Accepting Reality