As a patient advocate, I am often called, inspiring, motivating, and full of strength despite my adversities. The truth is that most days, I am just treading water.
A Messy Easter
For someone with a body failing at every opportunity, the joy and hope Easter offers is one day I will have a new life in heaven and a new body. Imagine no more sorrow or pain. How beautiful and what amazing grace to receive such a gift. At Christmas, we so easily celebrate the birth … Continue reading A Messy Easter
Silver Linings, Despite Difficulties
"The quiet words spoken to us that morning brought amazing peace and linked beautifully into the promise of a safe path for our future."
My Stoma Story Chapter Two….The Beginning of Blossom
**Includes Health Update** I decided I wanted a name that points to life, hope, and renewal. Something that makes me smile when I say it and gives me a sense of light heartedness.
Our Tapestry Of Life – Another New Year Begins
2023 is here!A new year awaits. Will it be a good year, a difficult year, a happy year, a sad year?One thing is certain, none of us really know.As I look back over my life, every year has had highs and lows. Mostly, my life has been exciting and exhilarating. Yes, even the past 12 … Continue reading Our Tapestry Of Life – Another New Year Begins
A Chronic Christmas Celebration….(A Few Tips to Create Your Own Unique Festive Holiday Traditions)
Looks like my husband and I made it on Santa's "good list". Santa even did an early drop off with personalised Santa sacks on the 23rd December!We are however not allowed to peek inside until Christmas morning. It even says so on Santa's sack! 😇😏🥰🎅 (yes, I am connecting with my inner child for a … Continue reading A Chronic Christmas Celebration….(A Few Tips to Create Your Own Unique Festive Holiday Traditions)
Have Yourself A Merry Little “Chronic Illness” Christmas!
As Christmas Day fast approaches I imagine most of us, in the chronic illness community, are musing about what we want to realistically achieve over the holiday period. For those of us with chronic disease it can be an incredibly overwhelming time. Just trying to be happy for others, when your body is screaming at … Continue reading Have Yourself A Merry Little “Chronic Illness” Christmas!
I’ve been indulging in Christmas Movies over the past couple of weeks. They've been the perfect distraction from my disease progression and escalating pain levels. They never used to be my thing but the more I watch, the more I fall in love with the beautiful locations they are filmed in, the Christmas scenes and … Continue reading Christmas Connections
My beautiful Dad passed away 18 months ago. The initial weeks after his passing saw me encompassed in raw grief. The kind of grief constantly creeping up on you, and opening the flood gate of tears, when you least expect it. The kind of grief where you grapple to make sense of it all. When you … Continue reading “Good Grief!”
Right Now I’m Thinking…What If?
If you constantly question your reality and worry about the future, you are not alone. Last year I was honoured to be invited to team with The Mighty to write an email newsletter, focusing on dealing with the “What If’s” of Life. I agreed in the hope my experience of living with a rare progressive disease, along … Continue reading Right Now I’m Thinking…What If?