What is the first thing that comes to mind if I tell you I've been having Pyjama Days? I asked this question to my carers, Registered Nurses and Occupational Therapists. I thought I'd get a range of answers from this group of people. However, they all answered with the same reply..... "A day of rest … Continue reading Sam’s Snippets Number Five – Pyjama Day With Purpose…Plus A Health Update
I just don't understand why someone in government departments and medical practices can't come up with ways to make administrative requests disability friendly.
Whatever your chronic disease or circumstances, don't let your happiness be defined by what has been taken away from you. Think upon the things that make you smile.
Ultimately, it doesn’t matter what day it is.It matters that I make the most of every single day and make the moments within the day count. It matters that I don’t waste time being discontent about my circumstances.
We need a holiday, but routine and familiarity are important for anyone living with Alzheimers, so going away is not an option.
What we often need is just someone standing with us while we wait. Not to tell us what to think or feel, just someone to show genuine care and understanding of our needs.
Chronic Illness takes many things from us. Some aspects of our diseases we can’t control but there are some we need to find a way to overcome. Over the past six months, I have felt like my disease has been winning. I’ve felt like a prisoner in a body determined to suffocate me. I’ve even … Continue reading I Can’t Give Up…..Please, Let Me Try!
How often do you tell yourself , "I should be doing such and such” or ” I’d better do this or that” ? We all do it. It’s like we are programmed from birth to constantly have a catalogue of, “should do, must do, better do”, all filed in the front of our minds for … Continue reading Why Do We Think We Can Do More Than We Are Capable Of? Why Don’t We Just Listen To Our Bodies?
I need time to have fun again, to block out all the "have too's" and spend blocks of time feeling free to focus on unimportant things, trivial things, moments of not worrying about commitments, life stresses etc.
Every now and again, I wake up to a "Chronic Illness Catastrophe Day." These are days that happen to all of us with chronic illness, and I'm on a quest to work out how best to manage them once and for all!
My Medical Musings 