Our Alzhiemers Rainbow …A Colourful Chaotic Time of Change

A Day In Our Life of Alzhiemers We've had a terrible night, the night before last.Lots of hail, another power outage, etc.Then my husband decided his catheter drain switch wasn't working, so he put a bulldog clip on the end of the tube. I rang the ambulance, and they came out and said it was … Continue reading Our Alzhiemers Rainbow …A Colourful Chaotic Time of Change

All I Want For Christmas is……Comfort and Joy

How can we all find comfort and joy this Christmas? I really don't have a dot point list of jolly holly answers for you. I'm not even sure I can rustle up a Ho Ho Ho!

Don’t Forget The Season of Advent….Christmas Is Coming

In the hustle and bustle of preparing for Christmas I love the Advent season. This is the season the Christian church celebrates in the lead up to Christmas. It’s the start of the Church year and Advent Sunday marks the four Sunday’s before Christmas Day.It’s a season of reflection and expectation. Advent is latin for … Continue reading Don’t Forget The Season of Advent….Christmas Is Coming

A Diagnosis, A Perfect Wheelchair and an Unknown Journey Ahead

We have an incredibly long and unknown journey ahead of us. We are both so exhausted but thankful for the support from carers, registered nurses and our medical teams.

A Special Birthday Blog…Celebrating My Birthday, My Book, and A Blessed Life.

In this blog post, I want to give you a bit of a sneak peek from portions of my book’s Preface and Introduction. As my blog followers, you have supported me for over 7 years, and it’s my little birthday gift to say “thank you”.

Blog/Podcast Party Month Is Here- My Book Giveaway Competition and a Chapter from my book (Chapter 21…A Drive Down Memory Lane)

Life has an amazing way of evolving, reinventing itself, no matter our circumstances, especially if we don’t lose sight of who we are.

It’s Party  Month…  Announcing My Podcast/Blog Party Month Book Competition

July is my birthday month, and I’m very excited to announce I’ll be running a competition on both my podcast and blog to give away a copy of my book: “My Medical Musings, A Story of Love Laughter Faith and Hope, Living With A Rare Disease “. All you need to do is listen to … Continue reading It’s Party  Month…  Announcing My Podcast/Blog Party Month Book Competition

I’m Just Tired…So Tired and That’s Ok.

I don’t want sympathy. I don’t want people to feel sad. I just need to express the exhaustion I feel living with an unrelenting, cruel and downright disgusting disease.

“The Good Stuff”….My Well-being Tips.

This is the stuff we need to do to mitigate "The Bad Stuff." This is about our well-being, our efforts to reclaim ourselves from the octopus arms of our diseases, and break free as much as we can.