For two years, before medically retiring, I was still holding out hope of being able to return to work eventually, despite being on Income Protection and battling one health hurdle after the other. The realist in me knew I was facing a very different life, as I began to lose my ability to walk any … Continue reading The Best Disability Advice I Ever Received Was Not What I Expected!
Is It Sunday, Monday, or Tuesday….And Does It Really Matter What Day It Is?
Ultimately, it doesn’t matter what day it is.It matters that I make the most of every single day and make the moments within the day count. It matters that I don’t waste time being discontent about my circumstances.
Just Treading Water
As a patient advocate, I am often called, inspiring, motivating, and full of strength despite my adversities. The truth is that most days, I am just treading water.
“Long Live The King”….A Coronation Celebration Chronic Illness Style
Love the Royal family or not, if you live in the UK or a Commonwealth country like Australia, Saturday May 6th is the Coronation of our new King Charles III. I can't think of a better way to mark this historic event than enjoying a high tea with my husband watching the pomp and ceremony chronic illness style.…. cucumber sandwiches, ham sandwiches, Devonshire scones etc and of course all on my best china!
A Messy Easter
For someone with a body failing at every opportunity, the joy and hope Easter offers is one day I will have a new life in heaven and a new body. Imagine no more sorrow or pain. How beautiful and what amazing grace to receive such a gift. At Christmas, we so easily celebrate the birth … Continue reading A Messy Easter
Honey, I’m Home! (Escaping Hospital Hazards and Embracing Home Harmonies)
Life is short. It's precious, and it's fragile while being incredibly resilient and strong. My home is my safe place, and I'm convinced because I love it, and I love my husband, it's the place that helps me heal in a way I never do in hospital.
Silver Linings, Despite Difficulties
"The quiet words spoken to us that morning brought amazing peace and linked beautifully into the promise of a safe path for our future."
The Wound Doctor’s & Co Podcast….My Interview Discussing Chronic Illness and the Doctor Patient Relationship.
47% of Australians live with a chronic disease, and Samantha Moss is one of them. We talk to her about how she manages her wounds, how she stays positive, and how health professionals can better care for people with long-term conditions
To Share or Not To Share? That is the Question.
As a writer, it's a question I constantly ask myself. My aim is to ensure no one is left guessing and I reduce the risk of misunderstanding.
What Does A “Chronically Ill Contented Life” Really Look Like?
Rather than expecting a perfect life filled with halcyon days, I choose to love and cherish the moments of my life where I can engage with some of the activities I enjoy.