A Life Of Love, Laughter, Faith And Hope, As I Learn To Live Again With A Rare Disease
On the 14th October 2021, after 5 weeks bed bound in hospital, due to my “acute” spinal collapse and bone disease progression, I was finally allowed home. I was sent home via ambulance as my condition hadn't improved. I still couldn't sit or stand for more than 2 minutes at a time. Walking with a … Continue reading Overwhelmed and Under Prepared
Some challenges in life hit us so hard, as we never saw them coming. Such challenges don't allow us the luxury of preparing ahead of time. They give no warning. They simply arrive! My "acute" spinal collapse , would prove to be one of the hardest challenges I have ever faced, and I've documented a … Continue reading Hard Work In Hospital
It was 3am Tuesday morning, 7th September, 2021. I desperately needed to go to the bathroom, so I rolled out of bed, the way physiotherapists had always shown me to do. I reached for my awaiting crutch and made it to the ensuite, not without pain, with my usual pain. I got back into bed … Continue reading An Acute Life Changing Chapter
My beautiful Dad passed away 5 months ago. The initial weeks after his passing saw me encompassed in raw grief. The kind of grief constantly creeping up on you, and opening the flood gate of tears, when you least expect it. The kind of grief where you grapple to make sense of it all. When you … Continue reading It’s Father’s Day…..”Good Grief!”
How can we practically deal with the "Great Expectations" of an upcoming medical appointment?It happens to all of us with chronic illness. We look at our calendar and see an appointment looming in the future. It offers such promise. We feel a little excited at the prospect of what may come from it.Hope. It offers … Continue reading Great “Medical” Expectations!
When we have chronic illness, our minds are quickly programmed to think about all the things we can no longer do. Doctors, allied health professionals, family and friends, can easily feed us messages which concur with our “I can’t do it” mindset. Don’t get me wrong, there is lots we can’t do when living with … Continue reading “You Sound And Look So Well!!”
(In loving memory of my precious Dad, who passed away peacefully on Easter Monday) One of my earliest childhood memories is being on the passenger ship "Aurelia". I was 3 years of age and embarking on a journey that would change the entire course of my life. I was migrating from the United Kingdom to Australia … Continue reading A Carousel Of Memories And Moments
Sometimes the path ahead in life can seem a little unclear. Sometimes we are faced with a range of life choices, almost too many, which often complicate matters and require a great deal of thought....too much thought!! Sometimes we have limited choices, none of which are particularly helpful, so instead of moving forward we feel … Continue reading What To Do When You Don’t Know What To Do!
There are times I yearn to write but words fail me. Is it because I am overthinking? Is it because I'm too tired and in too much pain? Or is it because if I wrote what I needed to write, it may be too raw, too much for my readers and even too much for … Continue reading Straight From My Heart
As I wake to a beautiful Christmas sunrise in Australia, I soak in the peace and quiet and reflect on how blessed I am to live in such a lovely country. While I'm used to a chronically ill isolated life, I'm so aware a COVID Christmas crisis is affecting so many lives globally and within … Continue reading Christmas COVID Crisis – Can Christmas Really Be Cancelled?
