As a patient advocate, I am often called, inspiring, motivating, and full of strength despite my adversities. The truth is, most days, I am just treading water.
Twists, Turns and Treading Water
Category: hope
To Share or Not To Share? That is the Question….But What’s the Answer?
As a writer, it’s a question I constantly ask myself. How much is too much? I always want to find the balance between sharing just enough about my own chronic illness/life experiences, so I can connect with my readers, however I don’t want my story to come across as needing a response or to concern people.
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Our Tapestry Of Life – Another New Year Begins
Have you looked closely at the back of a tapestry? Generally, they are full of threads in a bit of a jumble. It’s hard to make out what the image is from this viewpoint. You don’t have to see the whole tapestry. You just have to make the first stitch!
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‘Twas The Week Before Christmas and All Through The House….
Looking through the window from the outside lane, you'd be hard pressed not to think it was a quaint "Victorian scene." Even a Christmas card painting it would seem. Look a little closer and peek further inside. A slightly different image from the perfect home may be disguised.
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It’s Chronically Close To Christmas!
Perhaps chronic illness is giving me a Christmas gift. The gift of time. Time to stop. Time to get out of the rat race of life. Time to reconnect with what really matters in life.
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Cards, Choices, and Christmas Connections
My hope and prayer for you is that a Christmas miracle is awaiting, as you make a choice to engage meaningfully in this most wonderful time of the year.
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Are You Living A Happy Life or A Life You Think You Should Be Living?
(An Excerpt From Chapter Three of My Book, My Medical Musings, A Story of Love, Laughter, Faith and Hope: Living with a Rare Disease) Happiness is letting go of what you think your life is supposed to look like, and celebrating it for everything that it is” –Mandy Hale What an insightful quote! There is so … Continue reading Are You Living A Happy Life or A Life You Think You Should Be Living?
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Learning to Reclaim “Me”!
I need time to have fun again, to block out all the "have too's" and spend blocks of time feeling free to focus on unimportant things, trivial things, moments of not worrying about commitments, life stresses etc.
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“Good Grief!”
Good Grief - This final stage of grief offers hope of better days. Functional days arrive with renewed purposes. Acceptance brings peace.
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A “Newsy” Podcast Episode… A First For Us, Plus A Beautiful Blessing Received Many Years Ago
In this podcast episode, I tell the full story of why we have needed to fund raise. I discuss the overall experience of stepping outside of our comfort zone and the varying reactions of others. Plus, the meaning behind a simple phrase, told to me by a dear old lady when I was sweet 16, that connects this entire new journey.
My Medical Musings 