For those of us with Chronic Diseases, who are disabled to a point where getting out and about is difficult, our phones can be our lifeline. Many of us can no longer work and have given up exciting and rewarding careers because of our health. Connecting with others through blogging, writing, managing or participating in online support forums, provides opportunities to connect with the wider community, in a meaningful way, from our homes or hospital beds.
Many people with Chronic Illness require full time Carers. Often that role is filled by loved ones. Our husbands, wives, life partners, siblings, parents, children, even grandparents. Watching a loved one suffer is just so confronting. No one wants to see someone writhing in pain or watch the person they're caring for lose their ability … Continue reading Caring For the Carer…..It’s Not All About Us.
There is something good in every day. Is there? Is that even a possible concept for those of us who have chronic diseases? The initial response from the chronic illness community is likely to be a resounding "No". Pain, procedures, lack of sleep, lack of understanding, countless medical appointments and tests, chronic fatigue, lack of … Continue reading There Is Something Good In Every Day…..Even With Chronic Disease
Disappointments come to us all. They are part of life. As hard as they are to endure they can make the special moments in life seem even more precious. They also often teach us valuable life lessons. Despite that knowledge, we still need to live through life's disappointments. We need to find ways to survive … Continue reading Dealing With Disease And Disappointment
I love celebrating special occasions. I’m a real “Hallmarks moment” kind of girl. Always have been and I suspect I always will be. Cakes, balloons, lots of presents and good food. I love making the person who is celebrating their special day, feel like they are the most important and loved person in the world. … Continue reading A “Hallmark Moment”….. In Chronic Illness Style
One of my earliest childhood memories is being on the passenger ship "Aurelia". I was 3 years of age and embarking on a journey that would change the entire course of my life. I was migrating from the United Kingdom (London) to Fremantle, Western Australia with my parents and my older brother. Fuzzy and Special Memories … Continue reading A Carousel of Memories and Moments
One of the hardest things about living with a chronic illness, is learning that life has to be paced. No more jumping out of bed and embracing the day with the energy of a netball team. I know that sounds like an extreme analogy but that is how I used to live. I had that kind … Continue reading Embracing Chronic Illness In a “Deliberate” Way