Dealing With Disease And Disappointment

Disappointments come to us all. They are part of life. As hard as they are to endure they can make the special moments in life seem even more precious. They also often teach us valuable life lessons. Despite that knowledge, we still need to live through life's disappointments. We need to find ways to survive … Continue reading Dealing With Disease And Disappointment

Remember to Care For Our Carers -They Are Hurting Too!

Many people with Chronic Illness require full time Carers. Often that role is filled by loved ones. Our husband's, wives, life partners, siblings, parents, children, even grandparents. Watching a loved one suffer is just so confronting. No one wants to see someone writhing in pain or watch the person they're caring for lose their ability … Continue reading Remember to Care For Our Carers -They Are Hurting Too!

A “Hallmark Moment”….. In Chronic Illness Style

I love celebrating special occasions. I’m a real “Hallmarks moment” kind of girl. Always have been and I suspect I always will be. Cakes, balloons, lots of presents and good food. I love making the person who is celebrating their special day, feel like they are the most important and loved person in the world. … Continue reading A “Hallmark Moment”….. In Chronic Illness Style

Clinging To Hope….Maybe Tomorrow Will Be Better

Every morning I wake up thinking, "Today will be a better day" Everyday, for more years than I care to count, I finish the day feeling battle weary. Every night I close my eyes to sleep, clinging to the hope that sleep will be renewing and I will wake up feeling refreshed. Every night I … Continue reading Clinging To Hope….Maybe Tomorrow Will Be Better

A Carousel of Memories and Moments

One of my earliest childhood memories is being on the passenger ship "Aurelia". I was 3 years of age and embarking on a journey that would change the entire course of my life. I was migrating from the United Kingdom (London) to Fremantle, Western Australia with my parents and my older brother. Fuzzy and Special Memories … Continue reading A Carousel of Memories and Moments

Embracing Chronic Illness In a “Deliberate” Way

One of the hardest things about living with a chronic illness, is learning that life has to be paced. No more jumping out of bed and embracing the day with the energy of a netball team. I know that sounds like an extreme analogy but that is how I used to live. I had that kind … Continue reading Embracing Chronic Illness In a “Deliberate” Way

An Open Letter from a Husband Concerning His Chronically Ill Wife

A forum member on my FB group,  Medical Musings with Friends, posted an "open letter" that her husband recently wrote. It is so moving for anyone who is the primary caregiver for their loved one. I thank Him for giving me permission to publish it. To Whom It May Concern My wife was recently placed on … Continue reading An Open Letter from a Husband Concerning His Chronically Ill Wife