I'm so excited to share with you my interview as a Guest on "I Am Not My Pain Podcast. This is part one, of a two part interview. I was so honoured to be invited by Melissa to talk about my health story, my blog, my book, my forum and even more importantly, how I … Continue reading My Interview as a Guest on, “I Am Not My Pain Podcast” …..With Host Melissa Adams
Some dates are forever etched in our memories. I have a few but there are two I will never forget. October 6th 2014 is the first. It was the day my femur broke. It was a life changing day. A day that would start me on a journey with a rare bone disease, so rare that … Continue reading A Year Later…One Step, Two Steps…Will There Be A Third?
(As published on The Mighty) What are the rules for living with a chronic illness or rare disease? Where can I find the rule book to help me manage, especially when all my symptoms are flaring and are "Off The Charts"? This is the question my husband and I have been contemplating over recent weeks. How do … Continue reading My Four Day Rule
"I'm going to be your clown for the day" These are the words my husband greeted me with, as I munched on my cornflakes. I knew instantly why, but I imagine his statement will require some explaining. I had a crazy idea I could take on a bigger workload. As my regular readers will know, … Continue reading My Chronic Illness Clown For The Day!
It's almost 3 months since my official book launched. Wow, time flies doesn’t it! "My Medical Musings, A Story of Love, Laughter, Faith and Hope, Living With A Rare Disease", is both bitter-sweet for me. Without the horrors of my health, I wouldn’t be celebrating the excitement of my new writing career.I’m a little nervous about … Continue reading A Book and A Birthday… A Story of Love, Laughter, Faith and Hope
Growing up I loved the Susan Coolidge novels, "What Katy Did" , "What Katy Did At School" and What Katy Did Next". Katy had way too many good ideas, which generally got her into trouble, but things always worked out well in the end. There was definitely always a morale to the story. I think … Continue reading What Sam Did Next…
This week I celebrated my 57th birthday! I wasn't going to reveal my age but then I thought, "wow I'm 57....I made it to 57". So with that thought I realised I should shout it from the mountain top. My health has not been kind for the past 15 years and on a few occasions … Continue reading Seize The Day
How many times have you said, “No worries, that’s as easy as…….”I know I’ve said it countless times during my life. In fact its how I used to live my life. Everything was seemingly easy and if it wasn’t, I could quickly convince myself it was.I had a positive can do, absolutely, yes to everything, … Continue reading It’s Never As Easy As…
For two years, before medically retiring, I was still holding out hope of being able to return to work eventually, despite being on Income Protection and battling one health hurdle after the other. The realist in me knew I was facing a very different life, as I began to lose my ability to walk any … Continue reading Driving “Miss Sam”
Snap, crackle and pop…and just like that I can't move my back. I've been doing reasonably well so it's disappointing when my broken body decides to break a little more, but this is life with a crazy bone disease. I can't thank my beautiful husband enough for his love and support. When you can't do … Continue reading Snap, Crackle, Pop…Caring Love Never Stops!
My Medical Musings 