(In loving memory of my precious Dad, who passed away peacefully on EasterMonday) One of my earliest childhood memories is being on the passenger ship "Aurelia". I was 3 years of age and embarking on a journey that would change the entire course of my life. I was migrating from the United Kingdom to Australia with … Continue reading A Carousel Of Memories And Moments
I love celebrating special occasions. I’m a real “Hallmarks moment” kind of girl. Always have been and I suspect I always will be. Cakes, balloons, lots of presents and good food. I love making the person who is celebrating their special day, feel like they are the most important and loved person in the world. … Continue reading A “Hallmark Moment”….In Chronic Illness Style
(As published on The Mighty) What are the rules for living with a chronic illness or rare disease? Where can I find the rule book to help me manage, especially when all my symptoms are flaring and are "Off The Charts"? This is the question my husband and I have been contemplating over recent weeks. How do … Continue reading Where’s The “Off The Charts” Rule Book?
July 14th is Bastille Day. It also happens to be my birthday. I love all things French so I quite like sharing my birthday with such an important national day of celebration and remembrance for France. It is the anniversary of the storming of the Bastille and the start of the French Revolution. So What … Continue reading Breaking Free From A Birthday Bastillion
Many people with Chronic Illness require full time Carers. Often that role is filled by loved ones. Our husbands, wives, life partners, siblings, parents, children, even grandparents. Watching a loved one suffer is just so confronting. No one wants to see someone writhing in pain, or watch the person they're caring for lose their ability … Continue reading Caring For The Carer
As Christmas Day fast approaches I imagine most of us, in the chronic illness community, are musing about what we want to realistically achieve over the holiday period. For those of us with Chronic Disease it can be an incredibly overwhelming time. Just trying to be happy for others, when your body is screaming at … Continue reading Have Yourself A Merry Little “Chronic” Christmas
I can’t change my health situation but I can always change my mindset and I have deliberately choosen to embrace my new life.
There is something good in every day. Is there? Is that even a possible concept for those of us who have chronic diseases? The initial response from the chronic illness community is likely to be a resounding "No". Pain, procedures, lack of sleep, lack of understanding, countless medical appointments and tests, chronic fatigue, lack of … Continue reading There Is Something Good In Every Day…..Even With Chronic Disease
Disappointments come to us all. They are part of life. As hard as they are to endure they can make the special moments in life seem even more precious. They also often teach us valuable life lessons. Despite that knowledge, we still need to live through life's disappointments. We need to find ways to survive … Continue reading Dealing With Disease And Disappointment
A forum member on my FB group, Medical Musings with Friends, posted an "open letter" that her husband recently wrote. It is so moving for anyone who is the primary caregiver for their loved one. I thank Him for giving me permission to publish it. To Whom It May Concern My wife was recently placed on … Continue reading An Open Letter from a Husband Concerning His Chronically Ill Wife