A Life Of Love, Laughter, Faith And Hope, As I Learn To Live Again With A Rare Disease
We are only one week away from my official book launch. My Medical Musings..The Book is both bitter-sweet for me. Without the horrors of my health, I wouldn't be celebrating the wonders of my new writing career. I'm both excited and full of trepidation about the book launch. I share deeply personal things about my … Continue reading The Horrors of My Health and the Wonders of My New Writing Career.
Many people with Chronic Illness require full time Carers. Often that role is filled by loved ones. Our husbands, wives, life partners, siblings, parents, children, even grandparents.Watching a loved one suffer is just so confronting. No one wants to see someone writhing in pain, or watch the person they're caring for lose their ability to … Continue reading Caring For The Carer
There is always a lot I can write about in regards to my health but today I want to say “Happy Easter”.This is such a wonderful time of the year, full of the hope of new life, as we remember what Jesus did for us on the cross, dying so we might be saved and … Continue reading A Sweet Happy Easter!
You would be forgiven for thinking this is a Valentine’s Day post given the title I’ve chosen. Please rest assured it’s not. It’s a continuation of my musings about acceptance being the gateway to a new life. Acceptance is not a sad resignation, it’s the pathway to peace, happiness and freedom from prolonged grief. For me … Continue reading Loves and Losses
Sometimes laughter is the best medicine, especially when chronic illness turns the simple act of going to bed, into a circus act.I’m no poet, but as my husband and I recovered from last night’s antics over our morning coffee, our conversation ignited a tiny bit of poetic creativity:As I lay me down to sleepMy naughty … Continue reading As I Lay Me Down To Sleep…. Who Am I Kidding!
If at first you don't succeed….. Christmas Day Crisis Christmas Day was pretty much a right off for me. I was so unwell with a stoma blockage which caused many issues, including my pain medication not being absorbed. On Christmas Day I always like to wear a new outfit. It's been a long time tradition … Continue reading “If At First You Don’t Succeed….”
Love is a beautiful thing and never more so when it has ripened and flourished. On the 15th December, my husband and I will have been married 26 years, and on Christmas Day it's 27 years since our engagement. The Facebook post below sums up my love for Peter. Like all couples we have our, … Continue reading Our 26th Wedding Anniversary
As Christmas Day fast approaches I imagine most of us, in the chronic illness community, are musing about what we want to realistically achieve over the holiday period. For those of us with Chronic Disease it can be an incredibly overwhelming time. Just trying to be happy for others, when your body is screaming at … Continue reading Have Yourself A Merry Little “Chronic” Christmas
“Tis the season to be jolly, fa la la la la, la la la la” Is it? Do you feel jolly or do you feel exhausted, stressed? Do you feel overwhelmed by your chronic illness, which refuses to understand Christmas is fast approaching, and you really could do with feeling healthy for the festive season? … Continue reading Decking The Halls With Comfort And Joy
On the 14th October 2021, after 5 weeks bed bound in hospital, due to my “acute” spinal collapse and bone disease progression, I was finally allowed home. I was sent home via ambulance as my condition hadn't improved. I still couldn't sit or stand for more than 2 minutes at a time. Walking with a … Continue reading Overwhelmed and Under Prepared
My Medical Musings 