For those of us with Chronic Diseases, who are disabled to a point where getting out and about is difficult, our phones can be our lifeline. Many of us can no longer work and have given up exciting and rewarding careers because of our health. Connecting with others through blogging, writing, managing or participating in online support forums, provides opportunities to connect with the wider community, in a meaningful way, from our homes or hospital beds.
When living with chronic illness, goals need to be achievable but they also need to be something we are passionate about. Something that drives us to want to achieve them.
Chronic Illness is a tough cross to bear. There is no denying it. Having a cheerful disposition while writhing in pain, or dealing with news of a chronic illness diagnosis, may sound like an impossible dream. I can see my readers nodding and saying "you've got that right Sam!" Stay with me on this though..... … Continue reading Optimist, Pessimist, Chronic Complainer and A Kindness Mindset!
Many people with Chronic Illness require full time Carers. Often that role is filled by loved ones. Our husbands, wives, life partners, siblings, parents, children, even grandparents. Watching a loved one suffer is just so confronting. No one wants to see someone writhing in pain or watch the person they're caring for lose their ability … Continue reading Caring For the Carer…..It’s Not All About Us.
Every morning I wake up thinking, “Today will be a better day” Everyday, for more years than I care to count, I finish the day feeling battle weary. Every night I close my eyes to sleep, clinging to the hope that sleep will be renewing and I will wake up feeling refreshed. Every night I … Continue reading A New Day Will Dawn Every Morning….Clinging to Hope
One thing chronic illness guarantees is uncertainty. No matter how much we might like to think we have things under control, our bodies, our diseases, always find a way of creating times of chaos, confusion, fear and uncertainty. Sometimes it happens on a daily basis, sometimes every few months or just unexpectedly out of the … Continue reading Facing An Uncertain Future
There is something good in every day. Is there? Is that even a possible concept for those of us who have chronic diseases? The initial response from the chronic illness community is likely to be a resounding "No". Pain, procedures, lack of sleep, lack of understanding, countless medical appointments and tests, chronic fatigue, lack of … Continue reading There Is Something Good In Every Day…..Even With Chronic Disease