Many people with Chronic Illness require full time Carers. Often that role is filled by loved ones. Our husbands, wives, life partners, siblings, parents, children, even grandparents. Watching a loved one suffer is just so confronting. No one wants to see someone writhing in pain or watch the person they're caring for lose their ability … Continue reading Caring For the Carer…..It’s Not All About Us.
Every morning I wake up thinking, “Today will be a better day” Everyday, for more years than I care to count, I finish the day feeling battle weary. Every night I close my eyes to sleep, clinging to the hope that sleep will be renewing and I will wake up feeling refreshed. Every night I … Continue reading A New Day Will Dawn Every Morning….Clinging to Hope
One thing chronic illness guarantees is uncertainty. No matter how much we might like to think we have things under control, our bodies, our diseases, always find a way of creating times of chaos, confusion, fear and uncertainty. Sometimes it happens on a daily basis, sometimes every few months or just unexpectedly out of the … Continue reading Facing An Uncertain Future
There is something good in every day. Is there? Is that even a possible concept for those of us who have chronic diseases? The initial response from the chronic illness community is likely to be a resounding "No". Pain, procedures, lack of sleep, lack of understanding, countless medical appointments and tests, chronic fatigue, lack of … Continue reading There Is Something Good In Every Day…..Even With Chronic Disease
We all have moments in life when we hit a brick wall physically and perhaps mentally. It happens to the healthy and chronically ill alike. I remember in my "healthier" life, I'd get to the end of my working week and I'd be exhausted. It was a normal exhaustion. The kind where you just needed … Continue reading Running on Empty – Do Not Pass “Go”
Late last year, as the New Year approached, I decided to dare to dream and wrote a blog post, Let's Go Fly A Kite. The idea was to list a few things I would love to do but felt were way out of reach or were just pure imagination. I also had a small realistic list. … Continue reading My Very Own “Escape To The Country”
I wrote this article in February 2018. I was just starting to write a new article this week, on a similar theme, and realised this one says it all. The title I had in mind for a new blog post was “Accept and Adjust”. Accepting our chronic disease isn’t enough. We need to take the … Continue reading Is Acceptance Just Resignation?