February is the Month of Love….and Love Can Take Many Forms

You would be forgiven for thinking this is a Valentine’s Day post given the title I’ve chosen. It is about love but with a twist.

Our Alzhiemers Rainbow …A Colourful Chaotic Time of Change

A Day In Our Life of Alzhiemers We've had a terrible night, the night before last.Lots of hail, another power outage, etc.Then my husband decided his catheter drain switch wasn't working, so he put a bulldog clip on the end of the tube. I rang the ambulance, and they came out and said it was … Continue reading Our Alzhiemers Rainbow …A Colourful Chaotic Time of Change

All I Want For Christmas is……Comfort and Joy

How can we all find comfort and joy this Christmas? I really don't have a dot point list of jolly holly answers for you. I'm not even sure I can rustle up a Ho Ho Ho!

Finding Ways To Survive “Living in Limbo” with Chronic Illness

Life isn’t always straightforward. It's a bit of a cliche, I know, but it’s so true!Eight years ago, I sat in pain with two broken legs, recovering from two major surgeries eight weeks apart. I was facing a future filled with so many “unknown” elements.At that moment, “Life isn’t straight forward”, is exactly what came … Continue reading Finding Ways To Survive “Living in Limbo” with Chronic Illness

You Can Still Push Play But For Now It’s Time For Me To Permanently Press Pause On My Podcast.

Thank you to those of you who have supported my Podcast and your encouraging feedback over the past 4 years. I am so sorry to disappoint you.

Podcast/Blog Party Month Part Two- A Book Giveaway Competition (Chapter 2…A Full and Fulfilled Chronic Illness Life)

July is my birthday month, and I’m very excited to announce I’m running a competition on my podcast and the blog to give away a copy of my book: “My Medical Musings, A Story of Love Laughter Faith and Hope, Living With A Rare Disease “. All you need to do is listen to a … Continue reading Podcast/Blog Party Month Part Two- A Book Giveaway Competition (Chapter 2…A Full and Fulfilled Chronic Illness Life)

I’m Just Tired…So Tired and That’s Ok.

I don’t want sympathy. I don’t want people to feel sad. I just need to express the exhaustion I feel living with an unrelenting, cruel and downright disgusting disease.

A Bureaucracy  Marathon… Part Two of  Our “Fit to Drive” Medical Certificate Challenge!

I just don't understand why someone in government departments and medical practices can't come up with ways to make administrative requests disability friendly.