For two years, before medically retiring, I was still holding out hope of being able to return to work eventually, despite being on Income Protection and battling one health hurdle after the other. The realist in me knew I was facing a very different life, as I began to lose my ability to walk any … Continue reading The Best Disability Advice I Ever Received Was Not What I Expected!
Is It Sunday, Monday, or Tuesday….And Does It Really Matter What Day It Is?
Ultimately, it doesn’t matter what day it is.It matters that I make the most of every single day and make the moments within the day count. It matters that I don’t waste time being discontent about my circumstances.
Just Treading Water
As a patient advocate, I am often called, inspiring, motivating, and full of strength despite my adversities. The truth is that most days, I am just treading water.
My Stoma Story Chapter Two….The Beginning of Blossom
**Includes Health Update** I decided I wanted a name that points to life, hope, and renewal. Something that makes me smile when I say it and gives me a sense of light heartedness.
Embracing The Chronic Disease Circle of Change
(Warning: Some images in this blog post may be confronting) My approach to any life changing event always starts with making time to stop and think. It’s crucial to be deliberate and focused when dealing with change.
What Does A “Chronically Ill Contented Life” Really Look Like?
Rather than expecting a perfect life filled with halcyon days, I choose to love and cherish the moments of my life where I can engage with some of the activities I enjoy.
A Chronic Christmas Celebration….(A Few Tips to Create Your Own Unique Festive Holiday Traditions)
Looks like my husband and I made it on Santa's "good list". Santa even did an early drop off with personalised Santa sacks on the 23rd December!We are however not allowed to peek inside until Christmas morning. It even says so on Santa's sack! 😇😏🥰🎅 (yes, I am connecting with my inner child for a … Continue reading A Chronic Christmas Celebration….(A Few Tips to Create Your Own Unique Festive Holiday Traditions)
A Personal Letter from Sam….My Health and Life Update and an Apology.
Hi Everyone, I recently wrote a letter to the members of my support forum, Medical Musings with Friends . I wanted to apologise for being so quiet with replying to their comments on the forum, and not commenting on posts in general lately. I've managed to schedule daily segments to encourage community and discussion, but … Continue reading A Personal Letter from Sam….My Health and Life Update and an Apology.
Right Now I’m Thinking…What If?
If you constantly question your reality and worry about the future, you are not alone. Last year I was honoured to be invited to team with The Mighty to write an email newsletter, focusing on dealing with the “What If’s” of Life. I agreed in the hope my experience of living with a rare progressive disease, along … Continue reading Right Now I’m Thinking…What If?
Part Two of My Interview as a Guest on, “I Am Not My Pain Podcast”, with Host Melissa Adams
I am so excited to share part two of my interview with Melissa on her podcast, "I Am Not My Pain Podcast". In case you missed part one, which includes my introduction to Melissa and how we met, here is the link to my blog post containing everything you need to know, including the Podcast … Continue reading Part Two of My Interview as a Guest on, “I Am Not My Pain Podcast”, with Host Melissa Adams