Category: Love

Where Do I Start? A Diagnosis of Myositis and So Much Is Happening …. But I Will Try An Update!

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Hi Everyone, Since I last posted, our lives have been turned upside down. I think the best way to bring you the simplest update is to list the events, and then I'll chat about key issues. Here goes..... Let's start with good news: Peter had his ACAT assessment last week for 7⁷⁷Level 4 Aged Care … Continue reading Where Do I Start? A Diagnosis of Myositis and So Much Is Happening …. But I Will Try An Update!

February is the Month of Love….and Love Can Take Many Forms

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You would be forgiven for thinking this is a Valentine’s Day post given the title I’ve chosen. It is about love but with a twist.

All I Want For Christmas is……Comfort and Joy

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How can we all find comfort and joy this Christmas? I really don't have a dot point list of jolly holly answers for you. I'm not even sure I can rustle up a Ho Ho Ho!

My Medical Musings Christmas “Blogmas”…plus a Health Update

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This post is all about my Christmas musings during December last year as I realised I had written and shared more than I usually do and just haven’t had the time or energy this year.

Don’t Forget The Season of Advent….Christmas Is Coming

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In the hustle and bustle of preparing for Christmas I love the Advent season. This is the season the Christian church celebrates in the lead up to Christmas. It’s the start of the Church year and Advent Sunday marks the four Sunday’s before Christmas Day.It’s a season of reflection and expectation. Advent is latin for … Continue reading Don’t Forget The Season of Advent….Christmas Is Coming

A Diagnosis, A Perfect Wheelchair and an Unknown Journey Ahead

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We have an incredibly long and unknown journey ahead of us. We are both so exhausted but thankful for the support from carers, registered nurses and our medical teams.

Finding Ways To Survive “Living in Limbo” with Chronic Illness

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Life isn’t always straightforward. It's a bit of a cliche, I know, but it’s so true!Eight years ago, I sat in pain with two broken legs, recovering from two major surgeries eight weeks apart. I was facing a future filled with so many “unknown” elements.At that moment, “Life isn’t straight forward”, is exactly what came … Continue reading Finding Ways To Survive “Living in Limbo” with Chronic Illness

You Can Still Push Play But For Now It’s Time For Me To Permanently Press Pause On My Podcast.

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Thank you to those of you who have supported my Podcast and your encouraging feedback over the past 4 years. I am so sorry to disappoint you.

Podcast/Blog Party Month Part Two- A Book Giveaway Competition (Chapter 2…A Full and Fulfilled Chronic Illness Life)

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July is my birthday month, and I’m very excited to announce I’m running a competition on my podcast and the blog to give away a copy of my book: “My Medical Musings, A Story of Love Laughter Faith and Hope, Living With A Rare Disease “. All you need to do is listen to a … Continue reading Podcast/Blog Party Month Part Two- A Book Giveaway Competition (Chapter 2…A Full and Fulfilled Chronic Illness Life)