I wrote this blog post well before self isolation, quarantine and lockdown were common words in our vocabulary. As we enter a new world, dictated to us by COVID-19, my chronic illness life and the lives of so many disabled with chronic disease, may now be better understood. One of the ways those of us … Continue reading Home Sweet Home…My Chronic Illness/COVID-19 Sanctuary
"Tis the season to be jolly, fa la la la la, la la la la" 🎵🎶 Is it? Do you feel jolly or do you feel exhausted, stressed? Do you feel overwhelmed by your chronic illness, which refuses to understand Christmas is fast approaching, and you really could do with feeling healthy for the festive … Continue reading Creating Comfort And Joy At Christmas
In the hustle and bustle of preparing for Christmas I love the Advent season. This is the season the Christian church celebrates in the lead up to Christmas. It's the start of the Church year and Advent Sunday marks the four Sunday's before Christmas Day. It's a season of reflection and expectation. Advent is latin … Continue reading Don’t Forget The Beautiful Season Of Advent
Many people with Chronic Illness require full time Carers. Often that role is filled by loved ones. Our husbands, wives, life partners, siblings, parents, children, even grandparents. Watching a loved one suffer is just so confronting. No one wants to see someone writhing in pain or watch the person they're caring for lose their ability … Continue reading Caring For the Carer…..It’s Not All About Us.
There is something good in every day. Is there? Is that even a possible concept for those of us who have chronic diseases? The initial response from the chronic illness community is likely to be a resounding "No". Pain, procedures, lack of sleep, lack of understanding, countless medical appointments and tests, chronic fatigue, lack of … Continue reading There Is Something Good In Every Day…..Even With Chronic Disease
I love celebrating special occasions. I’m a real “Hallmarks moment” kind of girl. Always have been and I suspect I always will be. Cakes, balloons, lots of presents and good food. I love making the person who is celebrating their special day, feel like they are the most important and loved person in the world. … Continue reading A “Hallmark Moment”….. In Chronic Illness Style
I am really excited to introduce you all to my Guest Blogger, Rachel Fearnley. While Rachel doesn't live with a chronic illness herself, she is passionate about raising awareness of what it's like for families who live daily with someone who has a life limiting illness. Rachel is a social worker who has worked with children … Continue reading Guest Blogger, Rachel Fearnley – Ponderings of a Passionate Maverick