A Life Of Love, Laughter, Faith And Hope, As I Learn To Live Again With A Rare Disease
On the 14th October 2021, after 5 weeks bed bound in hospital, due to my “acute” spinal collapse and bone disease progression, I was finally allowed home. I was sent home via ambulance as my condition hadn't improved. I still couldn't sit or stand for more than 2 minutes at a time. Walking with a … Continue reading Overwhelmed and Under Prepared
My beautiful Dad passed away 5 months ago. The initial weeks after his passing saw me encompassed in raw grief. The kind of grief constantly creeping up on you, and opening the flood gate of tears, when you least expect it. The kind of grief where you grapple to make sense of it all. When you … Continue reading It’s Father’s Day…..”Good Grief!”
Snap, pop and crackle…and just like that I can't move my back. I've been doing reasonably well so it's disappointing when my broken body decides to break a little more, but this is life with a crazy bone disease. I can't thank my beautiful husband enough for his love and support. When you can't do … Continue reading Love Conquers All….Even Acute and Chronic Pain
I've always loved all things French so I quite like sharing my birthday with such an important national day of celebration and remembrance for France...July 14th, Bastille Day! It is the anniversary of the storming of the Bastille and the start of the French Revolution. So What Is A Bastillion? A bastillion is a fortress. … Continue reading Birthday Blues or Birthday Balloons?
Waiting isn’t easy, no matter what we are waiting for.2020 taught us this and 2021 has continued with the same waiting theme.As the world continues to grapple with a global health pandemic, we are all still waiting.Waiting for it to be over.Waiting for a vaccine against Coronavirus to become widely available and rolled out as … Continue reading Standing By You While You Wait
(In loving memory of my precious Dad, who passed away peacefully on Easter Monday) One of my earliest childhood memories is being on the passenger ship "Aurelia". I was 3 years of age and embarking on a journey that would change the entire course of my life. I was migrating from the United Kingdom to Australia … Continue reading A Carousel Of Memories And Moments
You would be forgiven for thinking this is a Valentine’s Day post given the title I’ve chosen. Please rest assured it’s not. It’s a continuation of my musings about acceptance being the gateway to a new life. Acceptance is not a sad resignation, it’s the pathway to peace, happiness and freedom from prolonged grief. For me … Continue reading Old Loves, New Loves
I’ve been indulging in Christmas Movies over the past couple of weeks. They have never really been my thing but the more I watched, the more I fell in love with the beautiful locations they are filmed in, the Christmas scenes and to my surprise, the scripts aren’t half bad. Sometimes a little predictable but … Continue reading Christmas Connections
Getting to the next level always requires ending something, leaving it behind, and moving on. Growth itself demands that we move on. Without the ability to end things, people stay stuck, never becoming who they are meant to be, never accomplishing all that their talents and abilities should afford them."Henry Cloud, Necessary Endings I love this … Continue reading We Can Stay Stuck Or We Can Grow
I love celebrating special occasions. I’m a real “Hallmarks moment” kind of girl. Always have been and I suspect I always will be. Cakes, balloons, lots of presents and good food. I love making the person who is celebrating their special day, feel like they are the most important and loved person in the world. … Continue reading A “Hallmark Moment”….In Chronic Illness Style
