We have an incredibly long and unknown journey ahead of us. We are both so exhausted but thankful for the support from carers, registered nurses and our medical teams.
A Diagnosis, A Perfect Wheelchair and an Unknown Journey Ahead
Category: medication
How On Earth Did We Become A COVID Couple??
I don't think I'll ever get rid of the vision of my husband slumped half on the floor, with his head slammed into the hard arm of the chair, unconscious and vomiting while unresponsive. I've never been so scared in all my life.
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Learning to Reclaim “Me”!
I need time to have fun again, to block out all the "have too's" and spend blocks of time feeling free to focus on unimportant things, trivial things, moments of not worrying about commitments, life stresses etc.
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Honey, I’m Home! (Escaping Hospital Hazards and Embracing Home Harmonies)
Life is short. It's precious, and it's fragile while being incredibly resilient and strong. My home is my safe place, and I'm convinced because I love it, and I love my husband, it's the place that helps me heal in a way I never do in hospital.
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Stoic or Stupid?
I was once called "Stoic" when I was working, because of the way I got on with my chronic health issues without fuss. I was always cheerful, smiling and putting others first. I kept working full time with this stoic attitude and nature, until my body physically would no longer let me. Even with a … Continue reading Stoic or Stupid?
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Hard Work In Hospital
Some challenges in life hit us so hard, as we never saw them coming. Such challenges don't allow us the luxury of preparing ahead of time. They give no warning. They simply arrive! My "acute" spinal collapse , would prove to be one of the hardest challenges I have ever faced, and I've documented a … Continue reading Hard Work In Hospital
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A Peek Through My Window Of Pain
Pain can’t just be ignored. Disease can’t just be ignored. People with disease and pain can’t just be forgotten. I’m not alone in suffering horrific daily pain. So many in society struggle every day. Some manage to work or interact with the wider community in some way. Others like me, live a permanently reclusive life … Continue reading A Peek Through My Window Of Pain
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Blissfully Broken
You’re probably wondering what on earth the title to this blog post means. How can you be “Blissfully Broken”? No I haven’t gone mad…..ok, maybe just a little! I’m musing about my life as it stands today. When chronic illness is complex it’s easy to feel overwhelmed. We can be diagnosed with so many adjunct … Continue reading Blissfully Broken
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A Hospital Stay To Remember…..Or Perhaps Forget!!
For 8 days in November 2017 I lay in a hospital bed basically writhing in pain. Rewind to the beginning of that 8 day period and I was being rushed to hospital in an ambulance as my left leg, the one with the non union femur fracture, was like a wooden block and it would … Continue reading A Hospital Stay To Remember…..Or Perhaps Forget!!
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Joy in the Morning
I have just had the night from hell. Pain has soared through every bone, muscle and joint in my body as my bone disease attacks from every angle. I woke from a deep sleep screaming at 2am, causing my husband to jolt upright and run to my side. I couldn't move any limb. I was … Continue reading Joy in the Morning
My Medical Musings 