I wrote this article in February 2018. I was just starting to write a new article this week, on a similar theme, and realised this one says it all. The title I had in mind for a new blog post was “Accept and Adjust”. Accepting our chronic disease isn’t enough. We need to take the … Continue reading Is Acceptance Just Resignation?
If you love the original Mary Poppins movie, you will be very familiar with one of the songs sung by Dick Van Dyke, "Let's Go Fly A Kite" I've been singing it over the past few days as the lyrics and melody are so uplifting: With tuppence for paper and strings, You can have your … Continue reading “Let’s Go Fly A Kite”….Dreaming Dreams Despite Disability
I recently saw one of my favourite Specialists. I always look forward to seeing this particular Specialist. We have become good friends and enjoy chatting about all things French. She is mad about France as am I. With me being born on Bastille Day and also loving French decor, the food and the language, well … Continue reading Apparently Life Won’t Stand Still, Even If My Legs Won’t Work!
A friend recently posted a question in a Facebook Group, about ways to gain freedom in life, so you can choose how you want to live it. "What has most helped you to gain freedom in your life to choose exactly how you want to live it?" Jayne Bailey My response was one word. Acceptance. … Continue reading Is Acceptance Just Resignation?
I was sitting at our local cafe this week, which is situated on a Point overlooking the Bay and beautiful Islands beyond. It really couldn't be more idyllic and I am blessed to live so close to such a gorgeous place on Australia's east coast. As my husband and I were sipping our cool drinks … Continue reading The Tides of Chronic Illness
I really wasn't sure if I wanted to reflect on 2017. Was it worth reflecting on my life with chronic disease? Did I achieve anything? Did I want to relive what at times felt like days and months of overwhelming pain? One of my coping mechanisms, that helps me live well with my rare disease, … Continue reading Reflect and Restart
A week ago I posted a picture on Facebook of my first outing on my mobility scooter to our local Westfield Shopping Centre. It was a momentous occasion. The adrenalin of being able to move more than 50 metres kicked in and before we knew it 90 minutes had passed. It was a lovely afternoon and … Continue reading A Leap Too Far
It's nearly 3 years since my left femur snapped in two. Those first two years I can barely remember. It's a blur of surgery after surgery, hospital stay after hospital stay, recovery after recovery. Actually recovery is probably the wrong word because I haven't recovered. My left femur is still broken. It's officially diagnosed as … Continue reading The Next “Leg” of My Journey
My leg is not healing at all. My Orthopaedic Surgeon hung his head and sighed and cringed when I saw him yesterday. Actually his first comment was: "Happy New Year Darling", quickly followed by "and here comes my worst nightmare!" We laughed, we always do. He was joking, sort of. I am though his … Continue reading Starting Over!
My Medical Musings 