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Living a Life of Faith and Hope with a Rare Disease

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Osteopetrosis

Life is Full of Surprises!

February 6, 2016February 7, 2016 ~ Sam ~ 4 Comments

  It's a cliché! Life is full of surprises. We all know that and we probably all like to think we are prepared for them. Sometimes though they come when we least expect it and they are not always good. This week has been a really tough week. I was happily thinking I had 3 … Continue reading Life is Full of Surprises!

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The day my femur broke!

May 17, 2015September 6, 2020 ~ Sam ~ 19 Comments

My left femur broke spontaneously on October 6th 2014. It just snapped in two, no warning, apart from pain at the site for a few weeks, it just happened!! From a medical perspective it is a pathological break. We now know I have a rare genetic bone disease. It's The Strongest Bone In Your Body....It … Continue reading The day my femur broke!

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It’s A Rare Genetic Bone Disease

January 30, 2015March 10, 2018 ~ Sam ~ 6 Comments

It's 11 weeks post my left femur break and surgery to insert a titanium rod from my hip to my knee. I am still on 2 crutches and will be for another 3 months, at least. My Surgeon is pleased with my progress but keeps warning me this is a long slow process with healing expected to take 18 … Continue reading It’s A Rare Genetic Bone Disease

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My Story

January 28, 2015September 17, 2020 ~ Sam ~ 90 Comments

In 2010 I was in my mid 40’s, at the height of my career as an Executive Manager in a major bank. In April of 2010, I was getting ready to take 6 weeks long service leave to spend some quality time with my beautiful husband. We were going on a road trip, through South … Continue reading My Story

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My Medical Musings

My Medical Musings

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Australian Aspire Awards 2020 – Medal of Recognition Recipient for Community Advocacy. Thanks to Arthritis Queensland for the nomination!

WEGO Health Awards 2020 Best in Show: Blog Nominee

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WEGO Health Award Nominee 2020- Best in Show Community

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