Ultimately, it doesn’t matter what day it is.It matters that I make the most of every single day and make the moments within the day count. It matters that I don’t waste time being discontent about my circumstances.
There is always the temptation, when appointments or commitments are cancelled, to fill the time with other things. I know I can't, even though my head is always full of great ideas. My body is screaming at me. I have to listen to it.
There is something strangely calming about putting on the kettle, taking out a pretty china cup or mug, anticipating sitting in a comfy chair, and slowly sipping this hot delight.
I don’t want to be a prisoner to my disease. I want to scale whatever heights I can safely push, and ultimately I’m the only one who can decide my limits.
For someone with a body failing at every opportunity, the joy and hope Easter offers is one day I will have a new life in heaven and a new body. Imagine no more sorrow or pain. How beautiful and what amazing grace to receive such a gift. At Christmas, we so easily celebrate the birth … Continue reading A Messy Easter
(Warning: Some images in this blog post may be confronting) My approach to any life changing event always starts with making time to stop and think. It’s crucial to be deliberate and focused when dealing with change.
Rather than expecting a perfect life filled with halcyon days, I choose to love and cherish the moments of my life where I can engage with some of the activities I enjoy.
Looks like my husband and I made it on Santa's "good list". Santa even did an early drop off with personalised Santa sacks on the 23rd December!We are however not allowed to peek inside until Christmas morning. It even says so on Santa's sack! 😇😏🥰🎅 (yes, I am connecting with my inner child for a … Continue reading A Chronic Christmas Celebration….(A Few Tips to Create Your Own Unique Festive Holiday Traditions)
Some dates are forever etched in our memories. I have a few but there are two I will never forget. October 6th 2014 is the first. It was the day my femur broke. It was a life changing day. A day that would start me on a journey with a rare bone disease, so rare that … Continue reading A Year Later…One Step, Two Steps…Will There Be A Third?
I awoke to the sound of rain pouring down, and the sky was as black as the ace of spades. My body, as is normal, was screaming at me, as lying in bed for 6 hours causes every joint to seize, and my broken bones burn. I slowly twisted my legs off the bed and … Continue reading “Grief is the price we pay for love.” Queen Elizabeth II
My Medical Musings 