“Where There’s A Will There’s A Way”….Is It Really That Easy?

I was loading my dishwasher this morning and fighting with a plate that refused to fit in. It wasn't really the plates fault. I was in severe lower back pain and trying to get the task over as quickly as possible. I was also trying to fit way too much into this particular load.....as you … Continue reading “Where There’s A Will There’s A Way”….Is It Really That Easy?

Spinal Shenanigans….It’s A Little Complicated

It's official! My spine is full of shenanigans and my Specialists can't quite find a way to fix it, not without creating even more shenanigans. My spine is completely unstable at l4/l5. L3/l4 isn't far behind it but the pain I experience from the severity of the instability at l4/l5, smothers pain I would be … Continue reading Spinal Shenanigans….It’s A Little Complicated

Where’s The “Off The Charts” Rule Book?

(As published on The Mighty) What are the rules for living with a chronic illness or rare disease? Where can I find the rule book to help me manage, especially when all my symptoms are flaring and are "Off The Charts"? This is the question my husband and I have been contemplating over recent weeks. How do … Continue reading Where’s The “Off The Charts” Rule Book?

This One Is All About Handling Lemons

We all know the saying; "When life gives you lemons, use them to make lemonade" It conjures up the notion of strength, determination, optimism, resourcefulness, resilience. All characteristics I've drawn on to deal with the "chronic illness lemons" continuously thrown at me. My lemons often feel like tennis balls in one of those practice machines. … Continue reading This One Is All About Handling Lemons

“I Should, I Better, I Have To” …..No, You Really Don’t!!

How often do you tell yourself " I should be doing such and such" or " I'd better do this or that" ? We all do it. It's like we are programmed from birth to constantly have a catalogue of "should do, must do, better do", all filed in the front of our minds for … Continue reading “I Should, I Better, I Have To” …..No, You Really Don’t!!

Stoic By Nature…..Just Not For A Moment!

I was once called "Stoic", when I was working, because of the way I got on with my chronic health issues without fuss. I was always cheerful, smiling and putting others first. I kept working full time with that stoic attitude and nature, until my body physically would no longer let me. Even with a … Continue reading Stoic By Nature…..Just Not For A Moment!

Can You Have A Chronic Illness And A “To Do” List?

How many times have you written a "To Do List" this week? How many times have you looked at this list and felt like it's an impossible dream? How many times have you felt useless because you've only ticked off a few items? How many times have you looked at the list and felt like … Continue reading Can You Have A Chronic Illness And A “To Do” List?