Sometimes, all I need is a spoonful of strength. Living with a chronic disease reminds me of some of my previous plane trips. I’d start off full of nervous anticipation with a little fear of what lay ahead once on board. There were some smooth passages and then all of a sudden we’d hit almighty … Continue reading Calming Chronic Illness Turbulence With A Spoonful of Strength
I'm a huge fan of pacing. It's number one on my list of key chronic illness/ pain management strategies. Pacing doesn't remove symptoms or take all my pain away. It does help to reduce some discomfort and reduces the risk of me causing an escalation of more crippling issues. Well, usually it does that!! My … Continue reading Sometimes A “Sick Day” Is Necessary, Even If You Are Already Chronically Ill
I have a "Now or Never" philopsophy to life that sometimes gets me into trouble. Well, let's face it....always gets me into trouble! Living with a physical progressive disability involves a lot of pain, lack of mobility and extreme fatigue every day. This kind of disease is constant. It doesn't ebb and flow with flares. … Continue reading Pushing And Pacing With A Progressive Chronic Disease….Courageous Or Stupid?
Unrelenting levels of pain, excruciating pain, day in day out is isolating, exhausting. It's so hard to describe to others who have not experienced this kind of life altering agony. I know there are so many people who suffer enormous pain each and every day, who perhaps can’t find their voice to explain it or … Continue reading Shining a Light on Living with Chronic Pain
Ok, so the title probably sounds a little more dramatic than where I'm going with this.....but maybe not!! My regular readers will know I generally have a positive outlook on life, despite my disabling pain and crazy bone disease. I have accepted my circumstances, I love the things I can do and I don't stress … Continue reading Chronic Illness Catastrophe Days – How Can We Survive These?
You know that feeling when you are completing a jigsaw puzzle only to find that a piece is missing? It’s a devastating moment. Your stomach turns just a little. All that work, all that effort, all that anticipation of a final outcome. A completed picture was the awaiting reward but it’s been snatched away from … Continue reading Finding Your Way Through A Chronic Illness Conundrum
I was loading my dishwasher this morning and fighting with a plate that refused to fit in. It wasn't really the plates fault. I was in severe pain and trying to get the task over as quickly as possible. I was also trying to fit way too much into this particular load.....as you do!! So … Continue reading “Where There’s A Will There’s A Way”….Is It Really That Easy?