A Life Of Love, Laughter, Faith And Hope, As I Learn To Live Again With A Rare Disease
After writing my book I've been contemplating the different forms of communication within the"My Medical Musings" brand. The blog, the book, the podcast are all me, but all a different reflection of my voice. My online FB forum support group, is also a reflection of my voice. It's less about my personal thoughts, it's more … Continue reading The Authentic Voice
Without resilience there is no way I would be coping today, both with the horrors of my health and the wonders of my new writing career.
It’ll do”“It’s good enough”“You’re doing so well”” Good job”“Time to rest”“Not going to happen today”“Maybe tomorrow”In my previous life, by which I mean life before chronic illness, I always had a whole range of “self talk” language helping me achieve my goals.They were all positive, affirmative statements like;“you can do it, you’ve got this, keep … Continue reading Self Talk….”It’ll Do” And Other Chronic Illness Chat Lines
When living with chronic illness, and particularly chronic pain, life needs a level of certainty, of routine. To a large degree we can create workable daily routines, manage our medications and medical appointments and keep life ticking along so we maintain our equilibrium as much as possible. I actually love change. Throughout my career I … Continue reading Nothing Lasts Forever…Time For A New Chapter
I’m not afraid of storms, for I’m learning how to sail my ship.Louisa May Alcott (Author of “Little Women”) I always think we have a choice when faced with “storms of life”.We can bunker down and wait for the storm to pass, or we can continue to live, albeit with impediments, and find a way … Continue reading Sailing Through Storms
You know the feeling of completing a jigsaw puzzle only to find a piece is missing?It’s a devastating moment. Your stomach turns just a little. So much work, so much effort. So much anticipation of revealing a beautiful picture and this awaiting reward has been snatched away from you!Chronic and complex illness is so often … Continue reading Looking For The Missing Piece Of The Puzzle
You would be forgiven for thinking this is a Valentine’s Day post given the title I’ve chosen. Please rest assured it’s not. It’s a continuation of my musings about acceptance being the gateway to a new life. Acceptance is not a sad resignation, it’s the pathway to peace, happiness and freedom from prolonged grief. For me … Continue reading Loves and Losses
We all make decisions every day. Big decisions, small decisions. Some we are aware of and some are just automatic. When I had reasonable health, I would spend my days making business and personal decisions without much effort. Some might have kept me awake at night but not many. I never had to think about … Continue reading The Most Important Decision When Living With Chronic Illness
We all know the saying; "When life gives you lemons, use them to make lemonade" It conjures up the notion of strength, determination, optimism, resourcefulness, resilience. All characteristics I've drawn on to deal with the "chronic illness lemons" continuously thrown at me. My lemons often feel like tennis balls in one of those practice machines. … Continue reading Let’s Make Some Lemonade!
2022 is upon us!A new year awaits. Will it be a good year, a difficult year, a happy year, a sad year?One thing is certain, none of us really know.This time last year, none of us knew how challenging 2021 would continue to be. I doubt a rampant, infectious virus, creating an ongoing and seemingly … Continue reading Our Tapestry of Life
My Medical Musings 