Facing An Uncertain Future

One thing chronic illness guarantees is uncertainty. No matter how much we might like to think we have things under control, our bodies, our diseases, always find a way of creating times of chaos, confusion, fear and uncertainty. Sometimes it happens on a daily basis, sometimes every few months or just unexpectedly out of the … Continue reading Facing An Uncertain Future

Running on Empty – Do Not Pass “Go”

We all have moments in life when we hit a brick wall physically and perhaps mentally. It happens to the healthy and chronically ill alike. I remember in my "healthier" life, I'd get to the end of my working week and I'd be exhausted. It was a normal exhaustion. The kind where you just needed … Continue reading Running on Empty – Do Not Pass “Go”

Sometimes A “Sick Day” Is Necessary, Even If You Are Already Chronically Ill

I'm a huge fan of pacing. It's number one on my list of key chronic illness/ pain management strategies. Pacing doesn't remove symptoms or take all my pain away. It does help to reduce some discomfort and reduces the risk of me causing an escalation of more crippling issues. Well, usually it does that!! My … Continue reading Sometimes A “Sick Day” Is Necessary, Even If You Are Already Chronically Ill

“Let’s Go Fly A Kite”….Dreaming Dreams Despite Disability

If you love the original Mary Poppins movie, you will be very familiar with one of the songs sung by Dick Van Dyke, "Let's Go Fly A Kite" I've been singing it over the past few days as the lyrics and melody are so uplifting: With tuppence for paper and strings, You can have your … Continue reading “Let’s Go Fly A Kite”….Dreaming Dreams Despite Disability

Finding Your Way Through A Chronic Illness Conundrum

You know that feeling when you are completing a jigsaw puzzle only to find that a piece is missing? It’s a devastating moment. Your stomach turns just a little. All that work, all that effort, all that anticipation of a final outcome. A completed picture was the awaiting reward but it’s been snatched away from … Continue reading Finding Your Way Through A Chronic Illness Conundrum