(An Excerpt From Chapter Three of My Book, My Medical Musings, A Story of Love, Laughter, Faith and Hope: Living with a Rare Disease) Happiness is letting go of what you think your life is supposed to look like, and celebrating it for everything that it is” –Mandy Hale What an insightful quote! There is so … Continue reading Are You Living A Happy Life or A Life You Think You Should Be Living?
I need time to have fun again, to block out all the "have too's" and spend blocks of time feeling free to focus on unimportant things, trivial things, moments of not worrying about commitments, life stresses etc.
In this podcast episode, I tell the full story of why we have needed to fund raise. I discuss the overall experience of stepping outside of our comfort zone and the varying reactions of others. Plus, the meaning behind a simple phrase, told to me by a dear old lady when I was sweet 16, that connects this entire new journey.
Hi everyone, For those who haven't been following my latest "Chronic Illness" adventure, five days ago, my husband and I launched a personal fundraising page. We never in our lives thought we would do something like this, but with the encouragement of friends and family, we decided to take a leap of faith. If you'd … Continue reading A Fundraising Newsletter
I never thought I would need a Go Fund me account but I realise there are times in our lives when we simply need to ask for help from a "village" of people, who are each able to assist just a little, so we can raise just enough.
Sometimes life with chronic illness can be overwhelming. It's not always because of your disease either. It's often all the appointments, including doctors, allied health professionals, equipment trials, dealing with government departments, routine tests and procedures, etc. It can become a full-time job. Your body becomes your business, your place of work, and you can … Continue reading A Heartfelt Letter To Whom It May Concern … I Need To Get My Life Back!
Sometimes, all I need is a glimmer of hope in the form of mini miracles.Living with a chronic disease reminds me of some of my previous plane trips. I’d start off full of nervous anticipation, with a little fear of what lay ahead once on board. There were some smooth passages, and then all of … Continue reading Don’t Miss the Mini Miracles and Unexpected Gifts in Your Life.
My beautiful friend has organised a "virtual" Australian book launch by purchasing 20 of my books to re sell at a special price of $35, including postage to anywhere in Australia. But wait...there's more (as they say) I have signed all 20 books and each signed copy also has a special message from me. If … Continue reading Don’t Miss Out on Our Exclusive “Signed, with a Special Message from Sam” Book Sale
Rather than expecting a perfect life filled with halcyon days, I choose to love and cherish the moments of my life where I can engage with some of the activities I enjoy.
When we live with chronic illness, the concept of continuous improvement seems almost ridiculous doesn’t it. But is it?
My Medical Musings 