Category: Rare Disease

Taking Time to Reflect

~ Sam ~ 1 Comment

Turning off Netflix and listening to the silence filling the room, can be so relaxing. Suddenly the birds outside can be heard tweeting, rather than Twitter chirping at you with a notification on your phone.

A New Year Promise…Hope In The Midst of Delight and Despair

~ Sam ~ 1 Comment

“For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future.”  Jeremiah 29 v 11 ( New International Version) I love this verse from the Bible. I can’t think of a better verse to read and muse on as we … Continue reading A New Year Promise…Hope In The Midst of Delight and Despair

What To Do When You Don’t Know What To Do!

~ Sam ~ 9 Comments

(Including a Health Update) Sometimes the path ahead in life can seem a little unclear. Sometimes we are faced with a range of life choices, almost too many, which often complicate matters and require a great deal of thought….too much thought!! Sometimes we have limited choices, none of which are particularly helpful, so instead of … Continue reading What To Do When You Don’t Know What To Do!

A Year Later…One Step, Two Steps…Will There Be A Third?

~ Sam ~ 3 Comments

Some dates are forever etched in our memories. I have a few but there are two I will never forget. October 6th 2014 is the first. It was the day my femur broke.   It was a life changing day. A day that would start me on a journey with a rare bone disease, so rare that … Continue reading A Year Later…One Step, Two Steps…Will There Be A Third?

Can You Have A Chronic Illness And A “To Do List”?

~ Sam ~ 6 Comments

How many times have you written a "To Do List" this week?How many times have you looked at the list and felt like it's an impossible dream?How many times have you felt useless because you've only ticked off a few items?How many times have you looked at the list and felt like it's been taunting … Continue reading Can You Have A Chronic Illness And A “To Do List”?