(As published on The Mighty) What are the rules for living with a chronic illness or rare disease? Where can I find the rule book? This is the question my husband and I have been contemplating over recent weeks. How do we know when we should worry and seek medical attention? How do we know if … Continue reading My Four-Day Rule
When you've lived with Chronic Illness for a number of years, at some point, you adjust to a new way of living. You eventually find a new norm. While you might expect a few highs, lows and some disease flares along the way, generally life evolves into a settled and comfortable pattern. Until it suddenly, … Continue reading “Would You Like A Second Opinion?”… Surreal And Scary!
One of my Facebook Forum members, Gina Baker, shared her story recently of living with Mitochondrial Disease. I was so glad she did as I knew very little about it and having a rare disease of my own, I am very keen to raise awareness of other rare diseases. I asked Gina if she would … Continue reading Shining The Light on Mitochondrial Disease with Guest Blogger – Gina Baker