“Why me” can become “why not me”. Sickness is a part of life. Accepting it as your new reality, can help change your disabled world into an abled world.
Category: Rare Disease
A Heartfelt Letter To Whom It May Concern … I Need To Get My Life Back!
Sometimes life with chronic illness can be overwhelming. It's not always because of your disease either. It's often all the appointments, including doctors, allied health professionals, equipment trials, dealing with government departments, routine tests and procedures, etc. It can become a full-time job. Your body becomes your business, your place of work, and you can … Continue reading A Heartfelt Letter To Whom It May Concern … I Need To Get My Life Back!
Don’t Miss the Mini Miracles and Unexpected Gifts in Your Life.
Sometimes, all I need is a glimmer of hope in the form of mini miracles.Living with a chronic disease reminds me of some of my previous plane trips. I’d start off full of nervous anticipation, with a little fear of what lay ahead once on board. There were some smooth passages, and then all of … Continue reading Don’t Miss the Mini Miracles and Unexpected Gifts in Your Life.
Don’t Miss Out on Our Exclusive “Signed, with a Special Message from Sam” Book Sale
My beautiful friend has organised a "virtual" Australian book launch by purchasing 20 of my books to re sell at a special price of $35, including postage to anywhere in Australia. But wait...there's more (as they say) I have signed all 20 books and each signed copy also has a special message from me. If … Continue reading Don’t Miss Out on Our Exclusive “Signed, with a Special Message from Sam” Book Sale
The Real Picture When I Say, “I’m Good.”
"My inbuilt professional persona began to surface as I looked at the phone next to me on the bed. It was inevitable. I would answer this call with a bright and upbeat greeting, no matter the real picture of searing pain and chronic disease."
What To Do When You Don’t Know What To Do!
(Including a Health Update) Sometimes the path ahead in life can seem a little unclear. Sometimes we are faced with a range of life choices, almost too many, which often complicate matters and require a great deal of thought….too much thought!! Sometimes we have limited choices, none of which are particularly helpful, so instead of … Continue reading What To Do When You Don’t Know What To Do!
Can You Have A Chronic Illness And A “To Do List”?
How many times have you written a "To Do List" this week?How many times have you looked at the list and felt like it's an impossible dream?How many times have you felt useless because you've only ticked off a few items?How many times have you looked at the list and felt like it's been taunting … Continue reading Can You Have A Chronic Illness And A “To Do List”?
Seize The Day
This week I celebrated my 57th birthday! I wasn't going to reveal my age but then I thought, "wow I'm 57....I made it to 57". So with that thought I realised I should shout it from the mountain top. My health has not been kind for the past 15 years and on a few occasions … Continue reading Seize The Day
Snap, Crackle, Pop…Caring Love Never Stops!
Snap, crackle and pop…and just like that I can't move my back. I've been doing reasonably well so it's disappointing when my broken body decides to break a little more, but this is life with a crazy bone disease. I can't thank my beautiful husband enough for his love and support. When you can't do … Continue reading Snap, Crackle, Pop…Caring Love Never Stops!
My Latest Podcast…A Dream Realised…I’m An Author!
My Latest Podcast episode is finally recorded... It's been a while between episodes but I've finally found time to record one!!As my book "My Medical Musings" is set to officially launch on May 20th, I share with you my excitement at achieving a lifelong dream of becoming an Author....and more importantly I encourage my listeners … Continue reading My Latest Podcast…A Dream Realised…I’m An Author!











